Hi all, Only been dropping into the boards lately felt I needed to break away my thoughts but realised how much support I get from coming on here. I am going to let my frustration out that have been building up for months. I just seem to go from one bug/infection to another and there seems to be no end to it. I think I am just getting to the end and back in to some control and then bang I get hit again. The norovirus has just got me, that has wiped me out. Have seen my MS nurse several times recently and having a full reassessment in April. I keep feeling like I am battling with myself to actually enjoy things and gain the drive not to give up. Really enjoying the Winter Olympics. I have positives in pushing myself at work and gaining certificates. I just need to find something that I don’t feel the MS is restricting. Got to point I feel like I need to live in a bubble. Has anyone had any experience of doing an adventure holiday with disabilities,? Barney
Thanks Jen. I love watching the snowboarding, luge, skeleton. I did have the flu jab. Your holiday sounds amazing and hiring the wheelchair sounds brill, it is much better to be able to enjoy yourself than struggle. I realised that when I went to the natural history museum. Just watching an episode of coach trip and they are doing an adventure course, loved it when I did Go Ape. That won’t happen again unless my legs improve. I really fancy zorbing will have to look up if can do if you can’t weight bear on your legs. Barney
Wow that sounds cool. Might have to try and find out about that too.
Hi Barney,
know just how you feel with the bugs,we all had the norovirus in november,all got the flu type bug in december, then we all got the rotavirus 10 days ago,we have never had so many bugs all at one,needless to say i am exhausted by it all.
J x
Tried to do some work today managed an hour and then had to get back in bed, as my head was hurting too much.
Hi hun. In your post I read how low all these infections have laid you and how fed upyou are
BUT
I also read lots of underlying strength and need to re-gain your oomph!
Dont try to push yourself too much. Remember, baby steps…this time of year gets everyone down…especiallly those affected badly by the atrocious weather.
So go back to bed when yo need to, but keep in mind, those holidaysd to come…you`ll get there…believe you will darlin!
luv Pollx
hiya
have read this through and just wanted to say everyday is like an adventure holiday for me! full of challenges! this ms malarkey is best conquered by a positive state of mind (a point on which you touched on and i agree 100%) i think ur attitude to participate in such a holiday is great-go for it! for those of us that cant but want to then i suggest we use what we have to make it happen! (imagination is a great thing-we shouldnt lose it when get to about 12!) and please tell us all about it when u have done it, i for one love to hear what others achieve.
ellie
Thanks Poll and Ellie. My bed does seem to be my best friend at moment. Can’t sleep at moment, my head is just spinning and over active. I have looked up some holidays since my post, which has given me some strength of looking forward to in the future. I am going through scared stage currently, I agree MS is an adventure in itself, not knowing what will happen when you wake up. I was determined this morning to be able to get out of bed, I did and within an hour my head went all strange and then went back to bed. Then tried to get up again and same occurred. I just don’t seem to be able to lift my head from pillow. Going to attempt to try some more sleep. Thanks for your support Barney
Thanks Poll and Ellie. My bed does seem to be my best friend at moment. Can’t sleep at moment, my head is just spinning and over active. I have looked up some holidays since my post, which has given me some strength of looking forward to in the future. I am going through scared stage currently, I agree MS is an adventure in itself, not knowing what will happen when you wake up. I was determined this morning to be able to get out of bed, I did and within an hour my head went all strange and then went back to bed. Then tried to get up again and same occurred. I just don’t seem to be able to lift my head from pillow. Going to attempt to try some more sleep. Thanks for your support Barney
Hi barney, about your head feeling strange…I find if I have extra time in bed and lie down a lot…getting up becomes harder and harder…are you able to rest/sleep propped up at all? It might help.
luv Pollx
Thanks Poll, I will give this a try. I think I have finally shifted the bug and now had 3 days of being able to do stuff. Managed my full working hours today. Have this really strange feeling in my feet, they feel like they are detached and finding it hard to walk. Will call my MS nurse on Thursday when she is in, so it is recorded. Suspect it is the after effects of the bug. Sending everyone hugs Barney
Hi Barney, There’s not a lot else I can add to what the others have said so instead I will send you (((((HUGS))))) for a speedy recovery. You take care. Janet x
Thanks Janet