Which DMD's???

New diagnosis and before diagnosis
1

Hi All,

After being in Limbo Land for just short of a year, i finally got diagnosed. This was after being fobbed off by a general Neurologist, and me asking to be referred to a MS Specialist.

Anyway, the consultation went as well as can be expected, with me getting upset when she diagnosed(which apparently is normal), upto that point i suppose i kept thinking it wasn’t MS, but hey ho, i will not let this stupid Disease beat me!!!

Basically, as the consultation was coming to an end, she told me to think about which DMD, i would like to try, read up about the various ones, then to let her know through the MS Nurse, and she would then apply for funding…is this the normal way/ as unfortunatly i know very little.

Also i would love to hear other peoples experiences with their choice of DMD, as i am fully aware that one does not suit all.

Thanks Guys xx

2

Hi Rosie

I am sorry to hear you have been diagnosed. I hope you are ok.

With regard to DMDs, you might find you will get more answers from the Everyday Living forum as these are people who are already diagnosed (generally) and will most likely already been taking DMDs, so can offer you a more informed opinion.

I am undiagnosed so I am afraid I can’t help, but wanted to offer you a ((hug)) instead as I’m sure this is a hard time for you

I am sure someone more knowledgeable than me will be along with some better answers soon!

PG xx