Hi,
I’ve recently been diagnosed with RRMS, which I have been coping fairly well with after initial shock!! however I had an appointment with neurologist and have been advised to look into 4 certain DMD’s, which have kind of terrified me. The side effects seem to be quite severe.
I’m also not one that would usually use forums. but i don’t know anyone else in this situation so any help/advice would be appreciated.
thank you,
Kelsey x
Hello Kelsey,
I’m sorry to read you’ve been diagnosed with MS. I know you’ll be in shock, so just give yourself a little time to come to terms with it. My MS has been nothing like as bad as I feared it would be, RRMS - diagnosed about 9 years ago, but suspected for many years before that. I went from denial to catastrophising and back to denial. Today I’ve been in remission for several years and am described as ‘stable’ - which I feel is accurate. If you saw me out and about I doubt you’d guess I had MS.
If you don’t already know it, here’s a link to a page on the MS Trust’s Website which will give you a lot of info on the various DMDs (Disease Modifying Drugs) which you have been offered.
https://www.mstrust.org.uk/about-ms/ms-treatments/ms-decisions
The page comes up often on this forum, I believe many have found it useful.
Best of luck
Ben
Hi Ben,
thanks for replying, this has made me feel a lot more at ease!
I think this is what is difficult with MS is that most people to look at you can’t tell they would have MS (myself included). I’m really happy to hear that you have been in remission for several years and coping well.
Thanks for the link, I’ll look into the treatments today.
Thanks again,
Kelsey