After a 9 year battle I was diagnosed with MS. MRI and lumbar puncture results meant they could no longer argue it was all in my head.
The neurologist phoned to give me the diagnoses and I feel totally lost. I asked about DMD and was told up here (Highland) they do not introduce them at diagnosis. They would only give if there is active demyelination or disabling relapses (my last disabling relapse was 2013). They can’t tell if I have active demyelination as my MRI was non contests. Is this normal with DMD or should they be at least considered at point of diagnosis?
i was told she would review me. I asked when, not expecting a date etc but a rough guide of how long I’d have to wait. She could give an idea of time and simply said “it shouldn’t be a year”. She said she MAY consider a repeat MRI with contrast at some point.
I asked about prognosis and was told “we can’t tell if it is bad or not yet but there are a couple of lesions on the brain and neck”. I know prognosis is difficult with MS but surely she could have given a bit more based on the MRI and my clinical presentation etc???