I agree, or volunteer transport/carer. Isn’t it really important to lie down after to prevent the headaches?
This guide to lumbar puncture is worth reading and it seems asking for a ‘atraumatic spinal needle’ greatly reduces the risk of headache.
Hello Flappyfeet. (great nickname by the way.)
I spent a small fortune on an electric wheelchair.
It was expensive but it’s transformed my life. In fact my main problem now is knowing when to stop. The elevating seat has given me access back to the kitchen.
Do you have a local MS Society branch who could help you with transport to hospital?
There may also be a local bus scheme-this is my local one:
Unfortunately my wife left me because she did not actually believe my symptoms were real. I was obviously just lazy (long story).
But my house is tidy and well run and I’ve had some big help from the local adult social care. They take their time but their assisstance has been epic.
Best wishes, Steve x
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The thing is though its about sharing and team work. My husband does more and he has COPD and is ill himself. You have 2 grown up kids there is no reason why they cant help you they should be anyway regardless of whether or not you have MS.
As you work, why not get a cleaner in? I have one it costs me 20.00 a week for 2 hours but in that time, she does quite a lot of things for me, the changing of my bed for one.
I have also chucked out loads of things lol, less dusting to do.
As to your lumbur puncture, i URGE you not to go on your own, no way are you fit enough to do that, and come home on your own. A LP needs aftercare, its a huge difference just travelling a few miles going home and resting, then to being stuck transport for 2 hours. No way should you be doing this. As you have MS why are you having an LP? There is no need for it anyway. I wouldnt even have it with a diagnosis already.
Honestly LP needs rests I know there are different ideas about the after care, but for me, after what i was told the after care is REST. Please rethink this.
Anyway, if you can get your resources together I really would get a cleaner. x
I totally agree with you. This is not good at all. The hospital could arrange for the patient to rest for a few hours afterwards which would be a help. Although for me, why the neuro needs this for someone with MS is beyond me. I know my neuro doesnt use this as a diagnostic tool now, as he said its way too invasive, and quite often just confuses the results.
Hi flappy,
I’m sorry. I didn’t write that well.
What I meant was, it’s the strong willed women on the Forum that are formidable, not your family.
Anthony
hi Anthony i undestood what you were meaning to say