I have had MS for quite a number of years, finally diagnosed around 2002 (my first obvious relapse was in 1995 when I developed Optical Neuritis). I carried on working (first in a busy shop as Manageress, and then as an Administrator in an Office which was part of a large Company. I was made redundant in 2003 as were many others in the Company, and failed to get another job.
I have never had what I expected a relapse to be like, just times that I am utterly exhausted and even struggle to walk without help over the last few years. I have also found doing day-to-day housework difficult, even with resting regularly in between tasks. My sleep pattern is all mixed up meaning that I go to bed late at night, take ages to fall asleep and as a result sleep till mid-day most days.
I hardly ever leave the house now except for dental appointments, doctors appointments and very occasionally hair dresser appointments. I have recently started to go to a support group for local people with MS once a month.
My partner of 22 years, who works busy factory shift work, is finding it all very difficult to cope with to the extent that he is getting very depressed. He told me tonight that it is because of me and my illness, and he thinks I should try to get back to living a ‘normal’ life like I used to when I was working. (He even hates or resents the fact that I now attend MS Meetings) and says that’s why he’s drinking more alcohol and being so short tempered with everyone and, I’ll have to find a way to change or…and left it like that.
I would like to ask if anyone could give me some advice on what to do.
Thank you in advance