Hello all, I’ve never written on one of these forum things before, but upon reading a few threads earlier thought I’d ask a question and see if anyone can help with my query… I’ve recently been diagnosed with Relapse & remittance MS, my symptoms are pins and needles all down my left hand side, constantly, worse at night, wobbly, unsteady, eyes feel like they are catching up with my head if that makes sense? Tired and worn out quite easily, I could go on but I won’t bore you! I’ve had an appt come through today to see the MS consultant to discuss treatment and where I go from here, I’m not sure what to expect really, the neurologist mentioned injections which frightens me slightly as I’m a bit of a wuss! Can anyone give me a bit more info as to what the consultant will do/say/give me??? Thank you in advance!! Heidi
Hi Heidi, and welcome to the site
The very best place to learn all about disease modifying treatment/drugs (DMDs) is the msdecisions website. As far as injecting goes, it is surprisingly easy! There are five injectable DMDs, each of which comes with different ways of doing the injection; some of which you don’t even need to see the needle.
I am a big fan of DMDs as they work brilliantly for me, but even on average they reduce relapse rates by 30%, reduce the severity of remaining relapses, delay the onset of disability, reduce disability and extend life span. So quite a lot in comparison to the hassle of injecting
I’m not being blasé here - I didn’t at all like the idea of injecting in the beginning either! But it honestly becomes quite routine after a few weeks and is, for most of us, well worth it.
I’m afraid I’m not too sure because what you should expect at the appointment as I’ve never had one, but I can tell you that it will speed things up if you have already chosen a DMD or at least have narrowed it down so you can decide on the day. As with all things these days, there is a lot of paperwork so the sooner it’s started the sooner you’ll get your meds (which are free and delivered by a logistics company).
Remember that you can always come off your DMD if, for whatever reason, it doesn’t work for you.
Hth.
Karen x