Hi all I made a post around July/August time last year about the symptoms I was getting.
- Pins and needles / tingling/ crawling all over body including the face
- random attacks of fatigue.
I had lots of blood tests everything was fine back the forth with the doctor I was finally ref to a specialist which was in the Musculoskeletal department . Also during this time I was taking Amitriptyline which seemed to ease the effects of the tingling but the medication was making me feel complete utter crap so I stop taking it.
At my appointment I was tested with all my reflexes and functions she didn’t seem like there was anything she could do and discussed my case with other specialists. I was finally ref to a neurologist.
During my time waiting for this appointment my symptoms where still there and trying a lot of different medications for the pins and needles didn’t work and to this point still hasn’t.
I went to my appointment I was so sure this time round I will get answers. All the neurologist done was the same exact tests as the previous person. No mri or nerve conduction studies. She sent for my B12 and calcium bloods. All came back fine with a letter stating she thinks my condition is something called FND Functional neurological disorder and medications to try. Feel free to read up but very similar symptoms to many things including MS . And after all that I thought is that it ? I’m been off sick from work as the pain I get from the pins and needles are so bad sometimes. Been back and forth getting sick notes and changing meds to see if it helps my symptoms and still nothing yet.
Im at the point now my doctor seem reluctant to give me a sick note last month and suggested try going back to work to distract you ? Like I’m dealing with something here that can’t be seen I’m in pain I feel like crap and I seem to be invisible and I have enough distractions at home with 2 kids and 3 dogs lol.
Im lost what to say or do next the doctor says I’m diagnosed I don’t need anymore tests? Can I even request to see another neurologist? Can I have a mri? I really would love some input from anyone experiencing this I feel quite lonely with this I haven’t got a lot of friends to talk to just any suggestions if I should take this issue further or not ? Thanks