Hi newbie here,I’m sure you’ve read lots of posts like mine,I’m looking for advice, my journey started about 7 years ago with painful,tingling feet,hips which has now progressed to pain in shoulders and elbows,had quite a few cortisol injections which don’t work anymore,the shoulders,elbows and upper arm spasms are excruciating and tinninitis.
ive had a rheumatologist appointment a few years back he did the test for fibro but said no and said I had planter fascilitis!
ive been back and forth the doc in the last few years with numbness of toes,pinky finger and fatigue,lots of blood tests,nothing the doc said fibromyalgia,had a few times where I’ve been so exhausted I haven’t been able to get up from the floor,widespread pain,felt like bee stings all over! Ive been to docs twice with inflammation of ribs on left side and pins and needles down my spine when putting chin to chest, I still have tingling in head,face and arms,my latest visit to docs was two weeks ago with trigamalgia neuralgia,boy that was bad,even went and had a tooth pulled but it wasn’t the tooth!
went back yesterday as ringing is still loud in my ears and have no taste buds,I asked if it would be possible to see a neurologist for the pins and needles and she said no as a neurologist focus on one part of a body as my problems are widespread it’s the fibro so have to go back for blood tests again she wants to give me,gabapentin/ampertrptilyne but I’m not convinced it’s fibro and I tried these a few years back and as I work in a school found they made me drowsy,can I ask to see a neurologist? Do you think I have grounds to ask ? Or should I accept the label of fibro? I just feel there’s more underlying going on and would like things ruled out. Any advice will be greatly appreciated !