I have been lurking around here for a while after being pointed here by an acquaintance and was hoping you helpful lot could give me some advice.
I am a 33 year old female and have been having some odd symptoms for almost 12 months now, the main ones being:
Fatigue
Drunk-feeling dizziness
No feeling in right hand
Eyes flicking upwards randomly
These are all constant but are worse when I have had a bad nights sleep. There are other things but I don’t necessarily think they’re related.
I went to see my GP in February who has (with some pushing) tested:
Bloods - all normal
Nerve conduction & EMG - normal
Head MRI - clear
She has so far (on separate occasions) diagnosed Fibromyalgia and ME/CFS. She has tried me on Amtriptyline and Gabapentine to help with nerve pain (which I do not have and continue to tell her), both of which have made my symptoms worse so I have stopped taking them, after speaking with her.
She has now said that she has done everything she can and it will just have to be put down as “one of those things that can’t be explained” and I will just have to live with it, if the medication isn’t working. I requested to be referred to a neurologist but she said that they’d only do the same things as her. The question is - should I push to see a neurologist? Will they bother investigating further or just fob me off?
Also a note to say that I do not necessarily think I have MS but I have no idea where to go for advice now and you all seem to have a lot of knowledge with all things neuro!
Im paying privately to see a neurologist but my gp said I needed to see one but the Waite would be too long on NHS. I’m not diagnosed yet but have like you looked around this site searching for answers ect. Just wanted to say hello I’ve a constant twitching eye it drives me mad also worse if I’m tired which is often. I’m aware of my eyes if that makes, sence.
Thanks for your reply. I am in a lucky position where I can also see a neurologist privately, the problem being that my GP seems to think it would be a waste of time as they would just do the same tests she has already done or even refuse to see me (if NHS)? I honestly don’t think that’s right at all though. Think I’m just looking for some reassurance that seeing a neurologist is the right thing to do.
I have had a look around the site and the forums, I am not ruling MS out but not convinced that is what it is. There is definitely something going on though!
Hi, fibro and MS do often mimic each other. GPs arent specialised in either, so if I were you, I would ask to see a neuro. Fibro also mimics rheumatoid arthritis, so maybe that could be checked out too.
Thank you. I think my GP was just trying to fob me off to be honest. When looking at Fibro symptoms, they do not seem to match up with mine at all. Interesting about rheumatoid arthritis as that runs in my family.
However; I am not in any pain at all, the tiredness, dizziness and forgetfulness (forgot about that one!) do effect my every day life but I can still manage. I am mainly fed up of feeling drunk everyday, especially when I have completely stopped drinking to see if that helps! I think if I was in pain, my GP may be more helpful, but I will push for a neuro appointment, thank you for your advice.
My gp was realy good but I’d had a mri of my head which showed multiple legions so that made her sit up and take notice. Initially she had blood tests done, xrays to rule out anything physical causing things and I’m sue a mri of my lower back. The bloods and xrays were all clear she then said I’d to see a nurolgist and a long NHS Waite ment I decided to pay private. It’s costing me 200 pound I’m not happy about paying but I don’t want to Waite up to a year she predicted to see someone. I’m keeping a diary now of things that are happening someone on the forum suggested doing this.