My partner was diagnosed with RRMS (and all her proffesionals suggest its very agressive) a little over two years ago. We’ve been through quite a bit already. She’s had attacks that have hospitalised her in a psychiatric unit following emotional regulatory issues that temporarily completely altered her persona; I’ve seen her with stroke-like symptoms rendering her speech slurred and her right side incapacitated; I have seen her wheelchair bound and I’ve seen her at her lowest. Last year however, she told me the surprise of a life time… We’re having a baby!! Our first born is due this coming Monday and there’s so much I need to get sorted, especially in my head.
At present, I work close to full time hours, I am studying part time to do my masters as well as caring for my partner. She can’t drive these days, she can’t walk further than 50 ft unassisted and she can’t wash herself or get dressed without assistance. I’m well aware this is at least partly due to typical third trimester mobility issues, but I am also aware that attacks are likely exacerbated and more likely postpartum.
Here, I’m just looking for any tips, guidance, and advice from any other carers, parents, and general busy people! At least once a week, I’m putting my back out after hunching over the bath to wash her every day (we can’t use a shower since it agitates where her shingles were). She’s getting down being confined to the house with poor mobility to get anywhere, I’m doing the shopping and the cooking because it’s just a bit too much for her right now.
We’re doing great though. We laugh all the time and have great fun every day and we’re coping really well. She’s looking the best I’ve ever seen her. She looks stunning and well together, her mood is balanced, and she’s clean! I’m just worried after the arrival of our little man it might be too much and I don’t want to let anything slip!
Hi Lester, I’m hoping that you are now a proud Mum and Dad, when your pregnant and have M.S its normally the best a women will be, sometimes after the baby is born some women have a relapse. The main thing is M.S or not, a women is absolutely drained as are you, so if you havent done rally the troops, fatigue is going to be tricky to manage with a new born, your wife needs rest periods where possible. May be worth getting her iron,b12 and vitamin d levels checked- truly hope all goes well for you both and Congatulations
Hi, sorry it took so long for me to reply…how are things?
Granny Boudsx