Weird symptom, waiting for a diagnosis

Hello !

It’s my first thread, I didn’t introduce myself in the introduction section as I’m not sure I have MS, I hope it’s ok. My name is Hugues and I am 28. Nice to meet you all.

I’m here because I have weird symptoms that are making me kind of anxious and I’m still waiting for a diagnosis. I know you must see a lot of this kind of threads and that I can’t get a diagnosis on an online forum, so maybe it’s a little pointless, but any input is welcome anyway.

My GP doesn’t know what I have and the rheumatologist I saw doesn’t know either, so I’ll see my neurologist in a month (I say my because I see him from time to time for my epilepsy, which is under control). I guess it’s not a long time to wait but it feels like it.

It all started with some twitches in my left hand a year ago (mainly thumb and index), then nothing for a few months, then the twiches came back, with in addition what feels like electric schocks and internal vibration (can’t be seen) in the hand and a reduced ability to use phone/computer keyboards (my fingers get tired and shaky pretty quickly in comparison with my other hand), as well as almost constant tingling. Since it was only one limb, my GP first thought about a mechanical probem and sent me to a rheumatologist. Just in case, she also prescribed me an EMG a few months ago, which was fine. I had to wear a brace at night for a few weaks, which helped a little with the increasing soarness, but had no significant impact overall. i also took some anti-inflammatory drugs for a few days, to no avail.

I was not so worried until a few days ago, when I started to also feel weird things in my left leg. First it was a pain in the middle of the foot, which lasted for a day, and then one of my toes started twiching all the time (+tingling). When it does, it triggers a sensation that extends to the ankle and sometimes higher. At some point my ankle became a little sore and now my lower leg feels kind of clumsy when I walk, the gesture comes less naturally than a few days ago. It’s quite hard to describe. I also have pain in my shoulders but maybe it’s anxiety induced.

Does it ring a bell ? Maybe it has nothing to do with MS, but well, you know what it is, I read about it online and then… In any case I don’t understand what it is and it freaks me out a little, as it starts affecting my daily life (harder to work with a weak, shaky hand, harder to run with a clmusy leg).

Thanks and have a happy new year’s eve :slight_smile:

Hi, could be MS or could be something else. Tell your neuro when you see him.
Happy New Year
Boudsx

Good that you are seeing a neurologist. Has anyone thought about magnesium deficiency? It still seems to be on very few doctors’ radars, even though it is very common. That can do some strange neurological things. Maybe check with your GP first, if you do think about supplementing, to make sure that it won’t clash with any meds you might be on, or with any other issues.

Thanks for your answers. My leg is fine again and my hand feels a little less weird, albeit electric shocks are still here.

I wonder if it was not a side effect of long term use of rogaine/minoxidil. I have been using it for 10 years and I tend do put more than what is recommended. I have stopped using it a week ago to see what happens and from there it gradually got a little better. I will try using it again in a week to see if my symptoms get stronger again. Maybe it’s just a coincidence.