Hi there everyone,
Just joined your lovely forum and already quite relieved to be among like-minded people who will hopefully understand how I’m feeling. However, I’ve not even been diagnosed yet - I just really need to talk to someone. Sorry for the long post - TL;DR, I’m stuck in limbo and my undiagnosed symptoms are just really bugging me now.
Longer version: I’m exhibiting a lot of MS symptoms atm and I’ve read an awful lot over the past few months that supports my theory I actually do have MS. I’m no doctor, but this would make a lot of sense. I’m trying hard not to ‘assume’ anything but it’s pretty difficult not to put 2 and 2 together - even if it’s true that MS symptoms mimic so many other ailments. I’m sure loads of you guys Googled your symptoms before being diagnosed too! Sometimes I wish we didn’t live in the Google age - a blessing & a curse it certainly is!
My first main symptom (which started up a few months ago) was a classic: constant pins & needles in my left foot. Beyond that, I’ve felt a sort of ‘electricity’ feeling occasionally sweeping through my leg - I guess it’s sort of like a spasm. When I move my leg too fast, I get an internal jolt. Doesn’t affect my movement - but just feels uncomfortable. Has anyone had that? My most recent symptom is a general shaky feeling - but manifests in my hands every now and then. From what I’ve read, the fact that it only seems to happen when I’m actively moving my hands seems to be typical of an MS tremor. This week I’ve been really intensely thinking about my symptoms (which is most likely making it worse!) and I’m feeling generally weak, worried and shaky. It’s bizarre - on the outside, nothing looks wrong at all with me. When I do my weekly yoga - surprise surprise - the famously calming exercise is where I feel most myself. But inside, I feel…buzzy.
I finally got a doc’s appointment this week - he made no mention of MS - just sent me for a blood test to check thyroid and lack of B-12 vitamin deficiency. But I’m not convinced. I eat a lot of B-12, and the thyroid idea doesn’t sit quite right with me. Again, I’m no doctor! But I’ve certainly put myself in a strange, psychological place where I can’t seem to think it’s anything else.
I really want to be positive about this whole thing - if it is MS, it’s not my fault and there are worse things out there in the world. But you know how it is. It’s scary not feeling like your body understands you anymore.
I’ve found following Instagrammers (who are all so positive and insanely beautiful! Classic Instagram!) who are diagnosed with MS and are sending out good vibes sharing their experiences really helps, but I also feel weird joining the MS club before even being diagnosed.
Nonetheless, with my symptoms similar to what MS is, I figured just being in the good company of you all would help calm me down Also, if anyone has any advice on how to ease my symptoms and anxiety, I’d love to hear some thoughts.
Many thanks in advance!