I have not been diagnosed with MS but have been told that it is likely that I might be, since I have symptoms consistent with the condition, and brain mri showed several patches of demyelination. Am waiting to see MS specialist consultant.
One question I would like to ask is about weight loss. I have looked and looked online, but as far as I can see there is no connection between MS relapses and weight loss.
However, during two of my ‘episodes’ (which have been about 9 months apart; both seemed to last 2-3 months), I have lost considerable ammounts of weight. I am quite slim anyway and the weight loss has put me below healthy BMI. The first time I saw a neurologist, I actually got a bit of a lecture from the nurse (who weighed me before I went in) about it - she then asked if I wanted a referal to a dietician. But the weight loss is definitely not through dieting, my apetite has actually increased, and I eat reasonably healthily. My GP has checked for all the obvious possibilities such as diabetes, thyroid, infections etc. In between episodes, my weight returned to normal.
I have not been able to find (from looking online) any links between MS flares and dramatic weight loss, which has made me wonder whether the cause of my symptoms may be something other than MS. I am seeing specialist quite soon, so should be able to ask him about it. But until then - does anyone else have experience of this?