Not sure if anyone can help or provide any useful insight , but thought it was worth a shot so here I am .
My mum has PPMS , diagnosed about 20 years ago . She gets up and dressed everyday with help of carers but is hoisted in and out of bed and chair etc , has a catheter etc . The last year has seen lots of hospital visits , cellulitis , low salt levels , uti’s , uti’s leading to sepsis etc. We’ve been doing our best to cheap a check on uti’s with d-mannose and Reg urine checks ( I bought the urine sticks online which are useful )
Aside from this mum has occasions where she falls asleep in the middle of the day and we can’t wake her up. Her sleep looks a bit disturbed , quite a lot of head bobbing . When i try and wake her she can hear me and does respond with words but can’t have a conversation and won’t open her eyes . If I try and touch her face she will move my hands away and cross her arms tight . She has done this sometimes when there has been an underlying issue like infection but also when nothing appears to be wrong and the next day is fine . Obviously it’s worrying when we can’t wake her to give her a drink or just generally knowing if there is anything wrong . Typically I’ll take her temp / bp and heart rate and often all ok . Sometimes it’s taken 2 hours of blaring elvis Presley into her ear and she might then come round . It’s the strangest thing , almost like a deep sleep or dream she can’t come out of and can’t last a whole 12 hours often longer.
just wondered if anyone has seen anything similar / any advice ?
Thanks in advance