Hi everyone
I feel a little silly being here because I am not diagnosed but I wanted to share what has been going on with me. I had a friend who was diagnosed with MS and I was researching it to find out all about it and I realized it sounded just like me.
-I have been suffering from vertigo on and off for years. I have also noticed, moreso lately, that my balance isn’t very good, and I will have times where I just fall over.
-About 2 years ago, I noticed the vision in my right eye went really blurry and I went to the eye doctor, but she said my prescription hasn’t changed so she didn’t know. Now the blurriness seems to come and go. I will have periods of times, days to weeks where it is blurry and other times where it seems okay.
-Almost a year ago, the right side of my face went numb and it stayed that way for about 2-3 months. I went to the doctor and he had a ct scan done but it showed nothing, and than it returned in January but it wasn’t just my face, it was also the left side of my back, like a circle almost, but it was also what felt like a thick band, about 3-4 inches wide that was numb from the left side of my back to the right. I also get tingling on and off in my hands and feet, as well as in my back, but that isn’t a constant, but the numbness is 24/7 for a few months. I also find sometimes when I go for a walk, my feet go numb and feel weird, no tingling though.
-I also noticed since my face started going numb, that my memory is shot and that I find it hard to concentrate, like if I am being asked too many things at once, I feel overwhelmed. So much so, that I have burst into tears because I cant get my thoughts in order, which isn’t normal for me.
-I have also noticed over the last year that I have to pee a lot. Like there will be times where I will pee 3 times in a half hour. I go through some periods of time where I don’t seem to have to urinate as frequently but it is very annoying when sometimes, I just go pee and than I have to go pee, again.
-Also over the last little while, I have noticed that my legs feel weaker, I especially notice when I climb my stairs. They feel like I have been climbing a hundred stairs and they hurt. I think this is weird because I literally walk everywhere. I am constantly walking and I don’t think my legs should feel so weak climbing so few stairs. I also find that sometimes when I wake up in the morning, it feels like I was exercising the day before because my muscles hurt, even if I haven’t been exercising. I also find that I cant squat for long periods of time, or even short for that matter. If I am squating, even for like 15-30 seconds, getting up can be excruciating.
- I also find that I get hit with extreme tiredness sometimes, like out of nowhere I need to lie down because I am througholy exhausted, like I was just hit by a truck.
-I also cant handle the heat. I get really sick if I get overheated.
-I also experience a lot of pain in the right side of my face. I sometimes get what feels like someone is stabbing me in the side of my head, and sometimes this pain will happen if I am out for a walk and it is windy. I thought at first it was the wind getting into my ear, but it happens if I have headphones on as well. That pain is more electrical and sharp, but I do experience a lot of ear and face pain that is more of a throbbing sensation.
I know that is a huge list, and thank you for reading this. I am just waiting to see a neurologist, and I am really scared that he will just call me crazy. I am wondering what I should expect at a first visit, seeing a neurologist.
Thanks so much.