Hiya, I’m pretty new to this site, have only posted once before.
Basically my story is this …
Have been having symptoms since January, started with feeling faint, dizzy, then started with tremor in left hand (mainly thumb) my legs would also shake quite badly, especially when first standing up, have often had to go round the house on my hands and knees.Legs very weak but heavy, found it quite difficult to place them, was like walking on sponge, my spatial awareness is pretty rubbish, I often walk into doors & can’t seem to lift my foot high enough if I need to step over something. I’ve had to start walking with a crutch as I feel more secure this way.
I have also had problems with my vision being blurry, seeing floaty things & its often like I’m in a fog, where all my vision is foggy. My tongue feels too big for my mouth quite a lot & I think my speech is slurred. I get a weird burning pain in my feet/legs which comes and goes. I also have a weird thing with my head where I feel like a nodding dog, get a weird creeping feeling as well as if something is crawling over my skin?
I’ve probably missed lots off there but you get the idea, lol
Anyway been under ENT, recently had balance tests which have revealed that my right ear balance mechanism is working at 37% less than my left which is causing my dizziness & have been diagnosed with Meniere’s Disease.
Today I saw the Neurologist for the first time & he seemed to think that all my symptoms point towards MS, he has ordered an open MRI as I’ve tried the normal one on several occasions now with no luck as I suffer with claustrophobia.
I suffer with anxiety & panic attacks, have done for 7yrs + now and I’m on Fluoxetine for this, also on qvar for my Asthma.
Just really wanted to know if I get a confirmed diagnosis what is the next step, what do I expect, what’s going to happen to me ?? I don’t know much about MS admittedly, I try and read up but I think it goes straight over my head and just doesn’t sink in at all but then if it isn’t confirmed what on earth is wrong with me ??
Hope this all makes sense, I’m just so confused really, my mum asked me how I felt about it but to be honest I really don’t know ?