Hi guys I am new here. So after waiting a year for my neurology appointment after severe facial numbness on the right side last year, I have finally been referred for a brain and spinal cord mri. No idea how long I will wait for this? Everything I get seems to be on the right side. I also had a postive clonis test on the right side at neurology appointment. Do we think this could be ms as that has been suggested? Thanks for any info.
Gosh nichola, really sorry to say but basically I haven’t a clue. None of us are medics and I suspect that the best we can say is ‘might be but might be something else’.
Hi Nichola
As Hank-Dogs says, we are not medics; there are unfortunately a lot of conditions that have similar symptoms and the Neuros and other disciplines will need to rule out a lot before they can say definitely yes/no to MS. It is difficult being in limbo, most of us have been there.
The MRI’s will pick up whatever they can when you go in for them, and the Neuro(s) will make their decisions accordingly; there may be further tests (evoked potential, lumbar puncture etc.) required as well.
Don’t let worrying about what ifs get in the way of getting on with life and living.
I had mri scan of brain and spinal cord in February and have a follow up appointment with neurology in June. Hopefully get some answers
Its such a long wait between having the MRI and getting the results back.
I only had the MRI on Sunday and already I’m impatient!
Are you able to at least read the scan report?
Hi Nichola i had same in October last year but i was rush out of my mri as had pain and buring sensations in my head so never got my second mri on my spiral cord but finally got appointment to go back for results after getting on to hospital how may pain had got worse so i know how you feel sometimes feel they dont take us seriously but anyway good luck hope you get positive outcome
So I was back to the doctors with new symptoms yesterday. Weakness in right hand and legs are very weak and finding walking difficult. The doctor gave me a copy of my mri results while I wait on my follow up appointment with neurology which is June 23rd. MRI of the brain showed inflammation demyelination and various other things. He is also asking neurology to bring my appointment forward due to the new symptoms. Let’s see what happens. Currently on a course of steroids