Hi guys Neuro recommended I take V7 D3 5000 iu vitamins any recommendations where to get them Thanks Gray
Years supply for £10
Oh they are also small about the size of a round smint size
and other small things
Thanks Ordered Gray
YW
It concerns me, that this online company are selling vit d 5000 iu tablets in one dose.
NICE, won’t be finishing their guidlines on safe dosage until the end of this year.
Just was well you didn’t see the 10000iu then
Alot of neuro bods are telling everyone with MS to take a min of 5,000 iu mine certainly is and though 5,000 sounds alot its not its about 0.125mg
Also if you google it alot of studies into D3 for MS said in can slow down progression and cut down on relapses my neuro bod told me this so I googled it, also people with MS do not make as much d3 from sitting in the sun a so called normal people.
I been taken 5,000 for a year and by blood test showed I’m just inside the normal level guidelines.
I thought NICE is a buying and approval body for drugs being brought to NHS market if they are also an authority on what supplements people with MS should be taking and their data is not out yet why are neuro bods telling everyone to take 5,000
Holland and Barrett are selling far more dangerous things online
Also here you would have to take 40,000 on a normal person to get toxicity
My neuro definitely didn’t say 5,000, he said 1,000.
I’m already taking 2,000, but didn’t tell him.
Tina
Not all neurologists are in agreement Hobs.
I’m actually thinking about taking them myself…probably not that dose though. I’m more surprised by the fact that you can get a years supply for £10.
I’ve checked them out on companies house. I’d like to know where they get their ingredients from, in order to sell so cheap.
You get so many bogus companies setting up, I like to do plenty of checking.
Have you had a blood test for D Anitra?
Seeing as D seams to be crucial I don’t know why they do not do a vit d level when they doing LP etc at diagnosis.
It’s Amazon and its made in UK, Amazon have a duty of care thing they won’t sell anything dodgy etc.
I use to get mine from HB but they are double the price and they double the price on everything from cod liver oil to garlic capsules.
My neuro recommended 1000iu of Vit D3 per day without any reference to what my D3 level was. I got the feeling that recommending that dosage meant he was able to say he’d made a recommendation and the level was so low that it was most unlikely to do any harm.
Trouble is, at that level I doubt it would actually do any good ?!! Just meet the neuro’s obligation, perhaps?
Next appointment I have with him, it’ll be interesting to see if this subject gets followed-up at all ?
Dom
Ha wow their all so different with the advise, I told mine I was taknig 25ug he looked at me and said thats no where near enough
with your size you should be taking min 5,000iu and I’m 5’9 and average bmi.
Seeing as he helped develop the new PML bloodtest I guess he knows what hes on about and he was kinda correct as I said before after bloodtest I was just in the safe zone.
My neuro actually wrote down on a piece of paper and handed it to me the vitamins I should be taking
I took this information from the Barts & London blog.
NEW RECOMMENDED DAILY ALLOWANCES FOR VITAMIN D3 SUPPLEMENTATION FROM EFSA
Adults 18 years or older = 4,000 U/day or 100 micrograms/day
Children 11-17 years of age = 4,000 U/day or 100 micrograms/day
Children 1-10 years of age = 2,000 U/day or 50 micrograms/day
Infants less than 1year of age = 1,000 U/day or 25 micrograms/day
Maximum safe dose or NOAEL = 11,000 U/day or 275 micrograms/day
http://multiple-sclerosis-research.blogspot.co.uk/2013/03/survey-results-vitamin-d.html
Hobs,
I had a blood test - but only after I started supplementing, not before. Also I was cheeky and asked for it when I was actually having my blood tested for something else. Nurse said: “Of course!” But must’ve confused my GP a bit, when she got results of a test she’d never requested, so had to grovel a bit at next visit.
Can’t remember any more what the result came out, but I know it was at the high end of the recommended range. The NHS recommended range, that is - not necessarily the higher range proposed by later research.
Anyway, the GP thought it was very high for anyone who was suspected of having a problem, so we definitely couldn’t put my aches and pains down to that. She didn’t think it was dangerously high though.
I can only guess at what it might have been if I hadn’t supplemented at all. I think I’d been doing it at least a year when I was tested.
As a bit of an aside, my sister, who doesn’t have MS (that we know of) was recently tested in connection with another matter. Hers came out very low - I think it was 17 - severely deficient. She’d had a pituitary tumour for years - in the end, she had an op to remove it. Many symptoms improved very quickly, but not the excessive tiredness. They found the Vitamin D deficiency by chance, during routine post-op monitoring. So now we don’t know which of her symptoms were caused by the tumour, and which may have been undetected Vitamin D deficiency all the time. Thankfully, the op seems to have gone well. But nobody had even looked at her vitamin D levels before now. I hope it doesn’t turn out she’s had brain surgery for what was really an untreated vitamin deficiency!
Her consultant knows I have MS, as well! I’m not saying they necessarily should have investigated for that, but you’d have thought Vitamin D might have been on the list of routine things to check, before they went as far as surgery.
Tina
Glad she’s ok now, I have MS, hypothyroidism and also Type 1 diabetic on NHS website two are linked with vitamin d deficency
and I was told all 3 are linked to my immune system.
Can’t repair thyroid gland but wipe out my immune system and pancreas would start making insulin again. But once it grows back it all starts all over again. Which is why I never understood the mitox treatment.
Anyway I keep popping pills and doing what I do, Oh I also take 80mg of simvastatins any one else take them? I thought they was trialing them.
http://www.nhs.uk/news/2013/06June/Pages/health-claims-about-vitamin-D-examined.aspx
I’ll carry on reading round the subject before making a decision on whether to take them.
For people that are taking high doses of vitamin D, think about getting your levels checked every so often.
Taken over a long period, it can cause more calcium to be absorbed than what the body can excrete. This could result in kidney damage.
If I do decide to take them in will be under the guidance of my GP
My neuro recommended I take 5,000 iu per day and that my son takes 1,000 iu per day as a precautionary measure. This is a top university hospital which is involved in major neurological research and they even handed me one of their fact sheets with these amounts printed on it. I’m happy to take these quantities and I order the vitamins from Amazon as they are so much cheaper than high street stores. Having said that, I do miss a couple of doses a week purely due to my dodgy memory.
I’ve had so many health checks over the course of the past year for various things that I am fairly sure if my health had been affected in any way by taking these vitamins long term, it would have shown up somewhere (urine, bloods, heart scan, chest x-ray etc). Nothing. I’m fit as a fiddle (I wish!)
Tracey xx
hi guys my ms nurse told me to take Natures Way 5000iu Vit D3(i get them off Amazon 240 for £14.99). She said she even took them herself even though she doesnt have MS because we dont get enough sun in this country. She also told me that through research its come to light that people who have live in sunny countries like Africa, there hasnt been any cases of MS.
When i got tested for my Vit D levels my results came back that my levels were less than half than what they should be. I was given Vit D/calcium pills to take four times a day for 3 months. I was taking 2500iu a day. When i got retested my level had only risen to 10 below the normal level. (71, mine 1st came back at 34).