Hi, I understand your problems only too well…been there, got the t-shirt etc!
In our area…Calderdale (Halifax) if we need a new referral, we have to ring social services on their Gateway to Care number.
There is always a waiting list, but if you express how very urgent the toileting needs are, you should be fast tracked to an OT.
I am at present waiting for a close-o-mat loo to be installed, as cleaning up is a real difficulty. .I waited 3 months to be seen, but it wasnt as urgent as your case as I am rarely left on my own. I now have a suprapubic catheter, so that
s one thing sorted, but when I need to go no 2s, I need help to get onto the commode. As you say, we never know when we may need to go`.
I have tried hoisting myself from wheelie to commode, but didnt do a good job and got into even more bother!
Hope you get sorted very soon.