Hi I’m looking for a bit of help please! I have MS and also renal failure (I am awaiting a transplant). My transplant surgeon recommended having a urostomy carried out prior to transplant as I have trouble self catheterising (I bleed and get frequent infections) but I was referred to a different urologist (my usual one said the op couldn’t be done by anyone in my health authority due to prior surgeries I’ve had) who said he didn’t do urostomies on people with MS as they can’t change their own bags! He suggested I had a supra pubic catheter fitted or continue to self catheterise. I pointed out that I managed to change my own bags when I had an ileostomy and I’m finding catheterising much more difficult but he just said no again.
My question is has anyone had experience of these forms of “drainage” and if so do you manage well ? (My left hand has altered feeling and lack of dexterity, but I can do most things if I can see my hand whilst doing things.). Thanks