Urostomy help please!

Everyday living
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I am waiting on a date for urostomy surgery, SCARED doesn’t even begin to describe it!

I have read as much as available and have lots of stuff to try out at home. I was wondering if any of you lovely ms’ers have had this done?

I have had 2 s/p’s which my body has kicked out I currently have a urethral cath which is requiring a change every 4-5 days. Painful!!!

So the decision to go for the surgery has been made but… I am freaking out!! Bricks are being passed if you get my drift.

Has anyone had this op done? Any advice please very gratefully received thank you xx

Jules xx

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Hi hun. Oh poor you facing a scary op.

I have an spc…2.5 years now. It isnt the be all and end all, but it`s much better than it was. I tried the indwelling type for 5 months and didnt like that at all. I couldnt sit…

I dont know owt about a urostomy, but I`ll google it to see what you are having done.

I think the best way to mentally handle it, is to think of the benefits…its got to be better, if you cant cope with spcs and dont fancy just wetting a pad...you would get sore and uncomfortable. Ive thought about that when my spc by-passes.

I`ll keep looking back here to see what other replies you get luv.

pollxx

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Hi again. I`ve read a lengthy information blog about urostomy surgery.

You`re right…it is quite a scary procedure…several hours too.

It will take some getting used to, but nurses will help you do this, until you feel confident to do your own emptying and care.

I wish you all the best for your op and will be thinking about you.

luv Pollxx

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Thanks Poll xx I hoped you would be around! You know lots of stuff!!

Much love Jules xx

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Ta very muchly babe xx

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I have to get a sample to the hospital so they are sure I am UTI free before progressing but by the sound of it we are chugging along quite quickly now! More deep breaths required Omm shanti

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Best of luck with it. Hopefully it all sounds worse than the reality. And once it’s done, maybe life will improve for you. Keeping finger crossed.

Sue

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Hi,I have had urostomy for 25 years it was the right thing to have done,but it is a big operation and takes some time to get used to.It as good points and bad.I’m not very good on the computer but if there is anything you want to know i’ll try my best to answer you.

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Hi Jules, it is good to know someone who has had this and this and is able to advise you.

Thankyou Joan.

pollxx

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Oh Thank you!! I am totally grateful for any info you can pas along! I got my date today 10th of May admission op on 11th I think. As it is such a long op I am really scared of the length of anaesthesia 5 hours seems very scary to me!

Thank you Jules x

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So admission date 10/5 as it is a 2pm admission time presume surgery will be next day. I have read as much as I can find just beyond scared now.

All good thoughts required please!

Jules xx

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Hi again…yes defo all good thoughts and best wishes coming your way darlin!

pollxx

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Its strange but that is the same date i had mine,all those years ago i went in day before and they asked which side i wanted the stoma on and they make a mark of the best place for you. I was in hospital for 3weeks. the stoma nurses are very good and helpful.I was also lucky with my husband as i was nervous he would not want to come near me with such a change in my body but he still there after 46 years i also thought i would’nt be able to travel just come back from a month in cambodia so it do’s not change anything plus you can still wear what you want no one can tell.so good luck will think about you on the day.Joanxx

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Thank you so much Joan! I am feeling very positive about having this done just concerned about the length of the surgery and recovery from anaesthetic. I am also worried about leaving my dog at home with hubby he is awesome and walks her 2x day but still ,he has to go to work and I know he will worry about me. It will be our 22 wedding anniversary on the 21/5 so a bit sad won’t be there/ just out of hospital. Silly things going through my mind I know

love Jules x

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So I got the sample to the doctors who were then forwarding it to the hospital. I have not heard anything so am presuming no news is good news right? Nothing else occurring really just more panic!!! & wait out.

Silly Julie xx

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I do have a UTI apparently so no good saying I was clear ha ha! The hospital phoned today while I was out offering me an admission for Monday!! What a load of arse, enough already!!! I cannot be admitted until the infection is clear and the antibiotic that is needed would interfere with the Tizanadine for my tremor.

I had my driving assessment today and the Julie is no longer driving I have had enough now and no longer want to play this game as it is crap

Thank you

Jules xx

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Oh bad luck Jules. Just as you’d got yourself ready to go for it and brave it out. What miserable flippin bad luck. The game is indeed crap as you rightly say.

Sue

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I know and I could of gone in on Monday instead, it would of been done so much quicker! I think they want me in for IV antibiotics I might as well stay there then and get it all over and done with really!

Thank you Sue all kind words truly appreciated right now xx

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xxxxxx

pollx

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Thanks Poll x