Forum

Stoma operation

Hello

I am new to this forum. I have had MS for 10 years rrms, and in this time I have suffered and gone through a lot of treatments.

I wondered if anyone could please give me advice on my upcoming stoma op. I saw my stoma nurse on Thursday and I have been marked and I am just waiting for the date. I am utterly terrified.

best wishes

Jacquie

Hi Jacquie

If you do a a search for the post I wrote titled ‘My colostomy operation’, it was written a year ago (nearly) and it might be interesting for you.

It is a scary thing to do, but now a year has gone by, it’s become fairly normal.

If you have specific questions, I’m quite happy to answer them (with my experience anyway) on this thread or you can send me a private message. I’ll do my best to help.

Sue

Hello Sue

Many thanks for your reply. I have tried to find the thread in the search box but unfortunately it does not give me any results.

I will try again tomorrow.

I appreciate your help. I just feel so lost just now. I am married with no children and my husband will not discuss with me anything to do with this operation it has been the hardest decision of my life so far. It really scares me the thought of being in so much pain after the operation as in my 48 years I have never had any major surgery. I had a feeding peg fitted 2 years ago and the next day I took peritonitis and pleurisy and was quite sick and I am really scared that I might take the same this time. My stoma nurse was really nice and I did explain my worries that by having this surgery I did not want to make my ms any worse.

Once I find my way around this ms forum I will message you for some more answers.

best wishes

Jacquie

Hello Sue

Many thanks for your reply. I have tried to find the thread in the search box but unfortunately it does not give me any results.

I will try again tomorrow.

I appreciate your help. I just feel so lost just now. I am married with no children and my husband will not discuss with me anything to do with this operation it has been the hardest decision of my life so far. It really scares me the thought of being in so much pain after the operation as in my 48 years I have never had any major surgery. I had a feeding peg fitted 2 years ago and the next day I took peritonitis and pleurisy and was quite sick and I am really scared that I might take the same this time. My stoma nurse was really nice and I did explain my worries that by having this surgery I did not want to make my ms any worse.

Once I find my way around this ms forum I will message you for some more answers.

best wishes

Jacquie

Hi Jacquie,

I believe this is the thread Sue is referring to > https://community.mssociety.org.uk/forums/everyday-living/my-colostomy-operation

Best,

Oliver - admin

2 Likes

That link didn’t work either Oliver. Try this one Jacquie: https://community.mssociety.org.uk/forums/everyday-living/my-colostomy-operation

1 Like

My dad has a stoma (non ms reasons). One bit of advice I can give you is to take peppermint oil in with you, after the operation he had a lot of trapped wind and the peppermint oil in hot water helped relieve this. Good luck.