Hello,
I have a urology appointment tomorrow and not sure what to expect - I was referred as I’m finding I’m having to go to the loo more and more often and usually don’t fully empty so have to go straight back - an incredibly annoying symptom! Does anyone have this and what should I expect from an initial urology appointment?!
Thanks x
@airdrop-geckos.4d Sorry I have nothing to help here but am going to watch with interest. If you don’t get answers, can you advise what happens when you get your appointment.
I have the same issue but each MS nurse appointment I put off getting help, but since it’s worsening, finally going to ask for a referral. I was diagnosed with triginotis in the past past, but this was before MS diagnosis.
Probably most of us have this!
Sorry, but your profile gives us no clues… Sex, Age, RR- or Progressive, Years with disease? Then we could offer suggestions.
Graeme
Thanks both - 40 female with RRMS
Suspected I’ve had this since around 2022 but confirmed in 2024.
It did take a few months for this referral - the MS nurses were going to refer me but it seemed to have gone nowhere and it was the neurologist himself once I had my MRI review who followed up with it.
My first urology appointment, they asked me to provide a sample and empty my bladder. They then did an ultrasound of my bladder and recorded I had 300 mls left in my bladder. Spoke with the urologist and she checked pelvic floor. Then discussed further testing and being taught to self catheterise. I was booked in for a cystoscopy, then a CT scan of bladder, kidney’s and tubes. I was diagnosed with a neurogenic bladder. Following further issues and because of my lactose allergy I’ve recently received bladder Botox for the spasms , it’s actually made a difference and taken away the bladder pain I was feeling.
I hope your appointment goes well for you.
Thank you Animali that’s really helpful to know 
Is self Catheterisation painful? I must admit, although I have no problem with blood and needles, this sort of thing makes me really nervous!
I have to say the nurse that taught me was very helpful. You’ll work out what is comfortable for you. Some people prefer to stand to self catheterise, but personally because of balance issues I sit on the toilet. It helps to familiarise yourself with your anatomy first as our urethra is tucked out the way. It’s not really painful as the catheters I use are pre lubricated, just be careful not to scratch your urethra as that can make it bleed.
Hello, I think lots of us have to deal with this kind of thing. After my trip I was given medicine to help with the urgency. Then after this my bladder wasn’t emptying completely so I get to self catheterise once a day to empty the bladder.
Good luck
Hi. I expect by now you’ve attended the appointment and I hope it was helpful!
I was referred to urology at our local hospital a few years go because I was having frequent UTIs. It was very thorough with scans, tests, measuring flow etc and even a camera to make sure there was nothing wrong inside the bladder. But the main outcome was a daily prophylactic antibiotic, minimal dose to prevent future UTIs and this is still working. They change the antibiotic every three months.
Hi, as Animali says, self catheterisation isn’t painful, they are lubricated, a bit weird to start (I ended up having a fit of the giggles in the loos at work in the early days of my using them) with and it is trial and error to find the best position for you. On the bright side, no more having to sit/hover on unpleasant public loos.
Thank you for the responses, it’s always helpful to hear others experiences. The urologist ended up prescribing mirabegron after asking about symptoms, medical history and so on - I haven’t taken any yet - is anyone else on this?!
Im also waiting for another appointment for some flow testing ect.
Just relaying my experience: in recent years, I had an ultrasound of kidney and bladder before and after emptying, they said there was a shot-glass of urine left in bladder, which presumably indicates it’s emptying okay. I still have urine leaking out when I laugh or sit down. The hospital suspect it to be the MS, unless it’s something else. Urinary flow post-void residual test was borderline in recent years. The most informed Urologist I saw was private/NHS in central London, first clinician to suspect MS, after previous Urologists failed to. So it’s always worth getting a second opinion to check whether medication is necessary at this stage or at least read into the side effects before such.