I wanted to put this up after speaking on the phone to the MS helpline. I have not been diagnosed with MS as yet and waiting on an mri scan this week as have optic neuritis at present and a medical history that suggests I may have had MS since 1998…we shall see. Anyway I just wantd to let anyone know about a wonderful proceedure I had done in 2002, after struggling to do intermittent self catheterisation for 3 yrs through the normal route. Spasms made it very hard to take it out after and sometimes unable to insert it! 3 hrs stuck on the loo sometimes made life difficult!
In the end I decided to have the op and have not looked back since…rarely have UTis or bladder infections and have the freedome I didnt have before. They take your appendix or part of your bowel, and make a tube and attach it to your bladder and it comes out just beow the belly button. Not had many problems with it apart from it tries to heal over sometimes but mine was pretty small to start with. I have had to have the outer hole(stoma) stretched once but apart from that its amazing. I had mne done at Nottingham City hospital, by a Dr Adrian Jones.(urology) A great team there and on the whole i would recommend this highly to anyone who is struggling in the way i was. They were not able to expalin why I had the spasms or which nerves were responsible but after loss of sensation to need to go after a RTA in 1994,the functional problems of my bladder did not start till 1998 when I ended up in hospital with a bad kideny infection due to my bladder not emptying at all…ouch!