So i was recently diagnosed with a neurogenic bladder, after having a cystoscopy, ultrasound, CT scan and MRI of bladder and kidneys. A few months ago I was taught to self catheterise which I do 3 times daily which eases retention and infections. Unfortunately when I was first diagnosed they dismissed the fact that I couldn’t feel my bladder , and could only feel it when in retention. So after a series of infection I finally got referred to urology and they’ve been so helpful and will continue to support with neuro urology.
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Glad to hear urology were helpful. I can’t feel my bladder and urology (once I finally got to see them) were great.
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Theresa, I must admit it took several months to sort out as my doctors thought a moisturiser would sort things out even after the MS nurse asked them to refer me. 
since intermittent self catheterisation Ive not as many infections and my nocturnal urination is vastly reduced. It’s good to hear another persons positive response from urology. As some areas of the uk people are told to see continence team without investigating if actual damage has happened to the urethra , kidneys or bladder.
Hi animali, I’ve also done well with urology, I did at first go through continence clinic, keeping diaries, but once they saw what was going on, (my bladders now over active) they referred me straight away and for the past 6/7yrs I’ve been having Botox injections every 5/6mths, which helps to clam the bladder and I also self catheter. I do still have to get up in the night, which is a pain, as my hubby has to help me, I’m SPMS and am in a wheelchair. I did have a suprapubic catheter fitted, but it kept bypassing so I had it taken out, my tram have told me that one day it will have to go back in, but we’ll see. Anyway after all that, I’m just saying my urology team are great.
Jean
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Hi Jean, that’s good to hear that urology have taken care of you. It makes a change to hear positive views as it makes it more encouraging for other’s suffering the same issues. My doctors surgery tried to cut me down on amount of catheters I was issued a month, urology told them again the number I should be issued and sorted out the problem before I had to complain.
Hope you had a lovely Christmas , and hope this horrible weather isn’t causing to many issues for you.
Maria x
Hi animali, Sadly like a lot of here this weather is killing me 
that and it does if it gets too hot, can’t win, I’ll be ok in spring LOL.
Take good care of yourself, stay warm and safe.
Jean x
Hi Jean,
Yes this weather is hideous and is making my Trigeminal neuralgia worse. I’m the same can’t stand the cold or the heat but I think personally the cold has a greater affect on my symptoms, I wear thermals and a hat all the time. You take care of yourself too Jean and stay warm. x
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OMG, I wear thermals too. sometimes I can’t believe how having MS is crazy, because during the day I need to keep warm, but in order to go to sleep I have to have cold towels on my legs and in between my legs as there on fire, as is my face, but I draw the line at putting anything on that, crazy isn’t it.
Take care lovely lady,
Jean
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Oh bless you, if I get to hot it makes me tachycardic. I have to sleep in a hat in the winter due to 75% of my head/ face is numb and cold the neurologist thinks I may get feeling back but it’s been like now for over a year and every relapse has added to this. You take care Jean, and roll on the spring time. It’s the nerve damage that causes the burning feeling in your legs, my face gets like that, but my hands and feet are freezing cold all the time. Keep warm Jean. Maria x
Hi animali, Yes I knew the burning and cold feelings are down to nerve damage, the other day my face resembled a tomato, honestly so bloody painful. Once of a day I took Gabepentin for it, but after years of doing this, it no longer touched it, I went onto Pregabalin, that made me feel worse, couldn’t tolerate it, so now apart from Baclofen for stiffness and spasms I don’t take anything, my MS nurse has informed that at the moment there’s nothing else, so like a lot on here I just get on with it the best I can.
Enjoy your day the best you can, stay warm and safe.
Jean x
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Oh bless you, it’s horrible and I feel your pain. I’ve tried them all, some I’m allergic too so I’m now on tramadol with paracetamol and carbamazepine for the Trigeminal neuralgia. Thank heavens for pre payment prescriptions otherwise it would cost me a fortune each month. For your pain have you tried duloxetine as it’s meant to ease nerve pain? Stay warm Jean and before we know it, it will be spring time. X
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Hi animali, No I haven’t tried that, for me I prefer at the moment to go down the line of using either the heat or the cold, i don’t want to feel spaced out, or even extra tired, as my fatigue levels are already up there, so I do try and stay away from the meds, but if others want to take them and they work, well that’s good.
Good luck to you and yes, Spring is around the corner, last year my hubby had a summer house built for me with a big awing attached as I can’t sit in the sun, again this sets the nerve pain off, so now I can sit out and enjoy the garden/birds and it’s lovely.
Jean x
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Hi Jean, I understand totally just thought I’d say about the medication as didn’t know if you’re aware. I hope the hot and cold treatment gives you some relief as can understand about the fatigue as mine is hideous daily.
How lovely, I use to love being in the heat, sun until last year and now I don’t know what’s worse the sun or the cold they both seem to be my enemy it’s so frustrating at times.
Take care Jean, and it’ll soon be time to sit in the garden again x
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