Hi everyone,
I have rrms.
I have problem with my bladder.
I have been doctors and urine sent off, all clear.
I keep feeling load of pressure if when i have been to the toilet.
Could this be to do with ms ?
Thankyou in advance 
for any replies.
Hi there. From what I know bladder problems are pretty common in people with MS. In my case the problem has varied between feeling that I really need to go but can’t , to not being fully aware that I need to pee until it becomes urgent and then having to rush to the toilet before I wet myself ( I have wet myself a couple of times - very embarrassing 
).
Oh and as @btrainor93 says, definitely talk to your MS Nurse about the problem
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Very common in MS. I experience an urgency to pass urine but dribble when I get to the toilet. Meaning unfortunately I retain urine. Sometimes I can experience extreme urgency out of the blue and wet myself- full flood. It might be a good idea to mention your physical symptoms to your neurologist or MS nurse and explain. They may refer you to a urologist to do tests on you. Not all blood tests and urine samples will reflect what your issue.
Good luck x
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Hiya, I was diagnosed in December 2023, and bladder issues started just before my diagnosis. I’ve had a series of UTI referred to urology for urine retention and unable to feel my bladder. I was taught to self catheterise and have had further testing cystoscopy, ultrasound, CT and MRI it’s come back as neurogenic bladder. So I’ll continue to self catheterise 3 times daily. I would seek the support of urology as it’s their specialty and they’ll complete the appropriate testing for you to get to the bottom of what’s going on.
Hi
Did you get any advice?
I am the same!
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Yep, loads of us have bladder issues, either going too much/frequently; feeling that you are busting to go and only getting a dribble, raging retention; not being able to feel bladder at all (not feeling it and retention are my issues).
Request/get a referral to a Urologist - I ended up having a melt down with a locum over my issues before I got a referral (more to get me out of the room I think).
Urology can assess what’s going on and advise/help you out. From memory, there was the peeing into their special loo set up that measures how much and flow rate (they do go out of the room for that); then they did an ultrasound to see how much is left in your bladder - at this point they nearly had a melt down and rushed me off for scans on my kidneys because the retention was spectacular (no damage to Ks), back at Urology they inserted a catheter (no problems there) to drain my bladder and since then I have been using intermittent self catheterisation (nowhere near as bad as that may sound) to keep on top of things.
Blood tests and UTI tests won’t show what is actually going on with your bladder - Urology is the best place.
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Thanks very much
I have had ultrasound and CT scans showing nothing - today been told it’s vaginal atrophy- so they are going to try that! Fingers crossed
I have the same feeling after going to the toilet. After having some tests done they confirmed I was sometimes retaining urine in my bladder. Now they keep trying to convince me to use intermittent self catheters, but I have said no. I am waiting for alternatives.
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hey there, I hope you’re well.
you’re not alone - I’ve also struggled with bladder problems. the bladder is considerably weaker than it once was, which is difficult, as I’ve been advised to drink lots of water for MS/general health, but this in turn can cause the urge to urinate every 30 mins or so. some things aggravate this further: alcohol, for example
my best tip thus far is to be strategic with water: I will drink plenty in the morning and early afternoon, and then drink smaller, and less frequent, by the late afternoon and eve. this generally helps manage things
as I understand it, bladder difficulties are very common with MS so, as I say, you’re not alone on this one…
all best, and have a good weekend
james
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