I am new to this site and looking for some help. This is my story of the last week. Basically I woke up with tingling hands and arms Friday. Then Sunday it progressed and I had tingling in my legs and feet. Monday I had a extremely severe pain behind my left eye. Went to the hospital were I work. The did bloods and a Neurological examination. They stated I needed an MRI with contrast to rule out MS because of my age (I’m 34) and I’m female (apparently it’s more common in females) but the doctor was more concerned about the pain behind my left eye and wanted to rule out optical neuritis. Saw the eye doctor who said my vision was fine and he couldn’t see any inflammation behind my eye to suggest optical neuritis but he said two thirds of the time they can’t see anyway. He told me to come back in two weeks with the results of my MRI.
Wednesday woke up to tingling tongue and pain all in my thighs. To cut a long story short GP sent me back to A&E.
A&E Did a CT scan to check for bleeds and clots that was clear. Got admitted into hospital. Every doctor I’ve seen said we need to rule out MS as you can imagined, at this point I’m extremely frightened and worried. They also wanted a lumber puncture.
Had lumber puncture done Thursday and MRI last night.
Anyway, last night I had my family visiting and an Orthopaedic doctor came to see me because I’ve got something wrong with my finger (completely unrelated it’s an infection) and my Mum said to her well she’s awaiting the results of her lumber puncture and MRI yet and the Orthopaedic doctor states oh it’s back! So I said well are the results clear??? And she said well is showing signs of slight demyelination. But I’m not qualified and then she scurried out of the curtains! So then after 4 days of worrying I thought right well that’s it if got MS! So I cried and cried.
Mum went and got someone and said a doctor has just been to see her and told her there is something on her scan but then left and didn’t explain properly what’s going on! Another doctor came to see us apologised and said my scan is saying there are some changes on my MRI scan but ‘there is little evidence to suggest demyelination’.
She said she’s really sorry about that orthopaedic doctor but she shouldn’t be telling information off people’s scans. They said she’s READ IT wrong!
I’m in a whirlwind at the moment. I’m still having symptoms and I still don’t know what’s going on until I see the consultant this morning.