Hi all. I was hospitalised in 2014 after I experienced pins and needles and numbness to my right arm, leg and my nether regions. I had 2 MRI scans and a lumbar puncture. Scans showed positive bands and I was treated with 3 days of IV steroids. I was told it was probably CIS. However, I have never been the same since. I still have pins and needles to both hands, my right thigh often feels numb and again has pins and needles. I have regular headaches, my right foot often feels heavy (dead) and I experience pain everywhere, my fingers,wrists,knees,hips,elbows and right foot. I am due to see neurologist again next Jan. Does anyone think I should try and see her sooner ? And maybe ask for a further MRI ? I am becoming increasingly convinced that I have MS.
Hi again! Well I think January is far too long to wait, if you’re suffering you need to speak up. Were I in your position, I think I would first have a chat with my GP and see if he could get the appointment brought forward. If that didn’t get me anywhere I’d try leaving a message, or request, with my neuro’s secretary. Whatever the cause of your symptoms, MS or not, surely they could prescribe something to hopefully ease your discomfort, particularly the pain.
Ben
Hi everyone waiting for a MRI scan can anyone tell me about there symptoms? Feel in limbo as the neurologist thinks I have bfs.
l was diagnosed 34yrs ago with PPMS by MRI and Lumbar Puncture. There is not treatment for PPMS - only supplements to keep myself as well as can be. l looked as if l had suffered a stroke down my left side. One side of face dropped and left leg dragging - also l became incontinent - and my speech was slurred.
l did have my mercury fillings removed and replaced with white ones at the Dental Hospital - this made a big difference. My facial problem and speech corrected it self. But l am still dragging that left leg - and l still have bladder and bowel problems.
l take Biotin - B12 - Thiamine - Vitd3 -VitK2 - magnesium - alpha lipoic acid - turmeric - boron. niacinamide. And rattle all day long.
Thanks spacejacket was it a quick progression or quite slow? Also do your symptoms come and go or are they permanent? Cheers john
Hi again Marie,
Yes, I agree with other folks that next January seems far too long to wait for a first appointment to see a neuro considering you are currently suffering so much pain and discomfort. I do feel for you. Your situation seems unbearable. I went through a similar time before I was diagnosed as do loads of other folks. Perhaps speak to your GP and stress how you feel now and ask them consider prescribing some pain relief for you or look at any meds you are currently on and to write to the neuro explaining and asking if they will bring your appointment forward. Pain pulls us down almost more than anything else.
Not knowing what is wrong leaves a person in limbo - not a good place to be. Once you have a definite diagnosis people (medics/nurses/family/friends) have more understanding and this really does help you cope better. The many support services then become available e.g. specialist nurses, OT, physio, etc.
Try to be confident with your GP and stress your current pains, etc. They should listen and hear what you are saying. Whatever your diagnosis (neuros can take a while to confirm or not MS) in the end there are folks on this forum who will hear what you are saying and will offer support and advice.
Thinking of you.
Anne
John, The initial symptoms were sudden and severe. l was newly pregnant at the time. With PPMS the symptoms stay with you - its RRMS where they get better - go into remission. As there was- and still is - no treatment for PPMS - l was left to get on with it. That is 34yrs ago. lt was 26 ys later that l even saw another neuro - and a complete waste of time that was. Do not have contact with a MS Nurse either.
Thanks for your message . But l think, as with most women ,we do tend to get on with life as we have responsibilities - family etc.
More women get MS then men - and l think it has a lot to do with vitamin d3 deficiency - as in pregnancy itself - a lot of our vitamins and nutrients go into making a new life. Same as in animals - many new mums get calcium collapse. And of course Vit D3 deficiency means calcium is not produced and utilised efficiently. Well that is my take on it.
Thanks spacejacket I appreciate your time.I’m feeling rubbish today but I think I’m coming down with something. Best wishes john
Hi Anne, I have contacted the neurologists secretary and they have given me an appt for end of August. So hopefully get to the bottom of things then. I am not worried as I am not dreadfully ill, it would just be good to know what it is that is causing my symptoms.