I was diagnosed with RR MS in 2001. I am currently on maternity leave from work but am upset about how I have been treated by my work in the past.
I have always been open about having MS when needed but I have always had to fight for any reasonable adjustments to be made. For example I cannot use a hand dryer every day to dry my hands so had to fight to get paper towels put back in the ladies toilets. I was told that the hand dryers were unlikely to make my hands tingle!!! An agreement was put into place eventually that the toilets on my floor would have paper towels in them. They did suggest that I have by own supply of them but I was unhappy about that as to me it was announcing to everyone that I was going to the toilet as I would be walking around the office with them lol. Even when it was agreed for our floor to have paper towels I had an almost daily battle to get them refilled.
Another thing was I suffer really badly with the cold and our whole office building was freezing cold because one little man from facilities liked it cold so we all had to suffer. I again had to fight for a warm, comfortable working environment, a heater etc. Eventually after a number of times being off sick due to me not being able to use my hands as a result of the working environment a meeting was set up with my manager and our health and safety team to discuss what was best for me. I found it surprising that I wasn’t actually included in the meeting to discuss my needs! After months I finally got a proper heater I could use and a desk move.
I have met up with a work friend today who told me that this little man from facilities used to bitch and moan about me because of “all my demands”. I was really upset by this as it was absolutely nothing to do with him. He was incharge of things like stationery, room bookings etc so when I had an assessment for a heater etc he shouldn’t have tried to block this imo as it was nothing to do with him. He even used to ask Health and Safety to have a copy of my records which was a complete data protection breach. I did make a complaint against how I was treated but our rubbish HR just fobbed me off so nothing was done.
The big thing that annoys me is my employer always rams it down everyones throat about how great they are to work for but imo they are not supportive at all
Sorry for the rant. I am just very upset about the attitude of my employer. Does anyone else experience this and/or can offer any advice?