I hope everyone is doing Ok or as well as can be.
I was diagnosed with rrms a coupe of weeks ago and have an appointment with my MS nurse on the 17th to discuss medication which is great news
I have been very open and honest with my employers at every stage throughout my diagnosis and yesterday I got hauled into a meeting which basically made me feel that a) like no one has listened to me for the last 6 months and b) like all my hard work and being a loyal employee for the last 7 and a half years was for nothing.
My employers have up until now been quite good in reducing my work load and letting me change my hours so I now start work at 7.30 am and finish at 4.00pm which gives ne more time to try and chill out when i get home. I should have known the understanding wouldn’t last.
However yesterday when I explained that I had an appointment with the nurse to discuss medication one of my employers turned to me and basically said “great so how long until your better?” Then followed it up with "when will you be back to working at full capacity.
I don’t know how to make them understand that i will never be “better” that MS is something I have for life and will be dealing with on a daily basis. Of course some days will be better than others (I hope).
I just feel as though they were saying that if Iwasnt back to working a full capacity I was going to be a burden on the company.
I’m sorry this is a bit of a rant, I just really needed a moan as I just felt so angry but it was only afterwards when I really thought about what had been said that I wished I had stood up for myself
Anyone else finding the work life / MS balance a bit of a struggle?