What a weekend I have just had. I have been on Tysabri since March 2013 and JC positive for about two years, now. One of the consequences of that is I have more regular MRIs.
On Friday, the 6th, I went for a scan not expecting anything to be any different. It was just the short scan, no contrast involved, but when that was done, and I was out of the machine, I was told the scan had found a bleed on my brain and under the advice of a neurosurgeon I should to be admitted for 48 hours and have regular obs done.
Next thing that happened was that I was taken over to A&E and quick-tracked into have obs done. After a three hour wait I was taken up to a ward and given a bed.
I am single, living on my own, and I found the almost constant noise, although not loud, hard to handle. Four hourly obs made it hard to get any sleep but at the back of my mind was the worry that I might not wake up from any sleep I did get.
Anyway nothing happened. I have to go back in 3 weeks for a CT scan. If not for the MRI I wouldn’t have known there was anything to be concerned about. I felt no different to how I had felt for a long time.
In a week’s time I am due to start Gilenya as my JC risk factor has got a bit much for me and hope things continue to hold as they are now.