Hello, i had optic neuritis back in 2023, over the last few weeks I’ve been experiencing some strange symtoms. I was just looking for some advice and to see what you all thought.
When ever i take a shower or bath i get an electrical feeling running through my body, when i get out of the shower i feel intense pain in my foot it moves on its own in a different direction and my toes twitch, to be honest it scared the life out of me. Also its happened with both of my hands. Its as if im not controlling those parts when it happens. Also im getting tightness in thighs and calf muscles. Knee pain both sides. My arm muscles go tight for no reason. Extreme fatigue. A pain from time to time underneath my eye. My fingers twitch and simetimes curl inwards. I sonetimes get extremely itchy either the back of my head or my feet.
Has anyone had these symptoms.
Thank you
All sounds very familiar! I hope you get the MRI soon and get some answers. Not knowing drives a person insane!
Take care, and try to take it easy. Also if you’re not on vitamin D that’s a good place to start
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Hi Gavin
It’s interesting that you said this happens after you have a bath or shower. Many many years ago they used to diagnose MS using a hot bath. If somebody could not get out of the bath, or really struggled to get out and then carried on struggling to stand up or move, that was seen as the evidence and proof. There’s something called Uhtoffs phenomenon, which basically means that when the weather or environment is hot the MS symptoms are worse. It doesn’t affect everybody with MS, and some people are affected by cold weather rather than hot.
I struggle with spasms, but fortunately not in my hands or feet. There are medications available such as baclofen, and cannabis has been proven to reduce spasms for people with MS which is why sativex has been approved by the NHS. When I was in California I discovered that edibles worked very well!
That sounds like I’m basically saying have cold showers and make yourself some hash brownies 
Take care
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Hi, thank you. Sounds like it hasn’t been too good for you either. I’m on vitamin d. I was told after having optic neuritis i did not have ms, but i could get it later. I feel like my doctor is sending me down the wrong path, so I’ve booked a private brain mri for tomorrow, to see if i have any lesions. My last mri was two years ago. I cant wait any longer, this has been driving me insane and im driving my partner and my kids insane.
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All the best for the MRI tomorrow. I
Hope you can get some answers! Hopefully they will be very quick with the results considering it’s private. This it’s a matter of days rather than weeks!
Hope all goes well tomorrow, fingers crossed you get the answers quickly.