I was just wanting to ask you all a couple of questions about heat affecting your symptoms.
I have MS as does my father. I was visiting him yesterday and he was nearly off his feet. Very very bad and I thought he was going to fall a couple of times. He does use a stick but think he could have been doing with a wheelchair yesterday.
Anyway I know to avoid heat as it maes my arms and legs like jelly. I was talking to him about when he had gotten worse and he said he hit the floor as he was getting out of the shower. I ased him if he had it hot and he yes, “god yes”. So this lead to me telling him that we are not meant to get overheated and that I can not use a bath anymore etc etc.
He is the type of person who doesn’t want to now too much about MS as it scares him but I think when it is something that could help he needs to listen.
So what I want to know is…with me after a shower I do get increased symptoms, jelly legs and arms but it only lasts maybe an hour or so. Could the heat from the shower have really knocked him for six for the whole day? I have not been talking to him today so don’t know if he is feeling better or not.
Even during our visit we sat in the garden in the sun. As we sat there and I got hot I could feel my bad arm and leg just getting weaer and weaker and the buzzing still hasn’t stopped. I also twitched all night and now have an awful tremor in my arm
Thanks in advance, Lindsay x