I rolled up atBarts hospital at the appointed time and it turns out that my consultant, Prof G, wants me to go on the trial for Fampridine. Its a drug that makes walking easier. Tysabri trial also in London, Fampridine one at Barts and Tysabri one in Euston Road and Barts as well as numerous other hospitals. All a bit confusing.
Its all a long story, I will chase up the Tysabri one tomorrow,
Watch this space, all will be revealed either here or on my website
My understanding is that Fampridine is at the stage where it is being reviewed by NICE as there have been some good results in trials.
I don’t think there is much chance of going on both trials as i must admit the criteria to go on the Tysabri trial was really strict. I had to go back to the QE three times to answer questions and be assessed. I think in all there are 850 people around the world going on the trial at 115 differant hospitals
All the best John I really hope you get on the good stuff, I’m on it over 3 years now and its worked wonders for me I have agressive RRMS but I’ve a few good friends that are SPMS and I wish so much that they could have a chance to try Tysabri fingers crossed it shows some really good results in SPMS
Cheers Mark, first infusion on May 15th and i really hope i get the good stuff as they ain’t much else going at the moment. At least if i don’t i will be closely monitored for the next 2 years with blood tests, walking tests, MRI scans etc etc so at least my neuro won’t be getting rid of me. They must have a good idea that it helps people with SPMS or i doubt they would be investing so much money in the trial.
John I have a friend in NewYork she’s SPMS and she’s in her 2nd year on Tysabri it’s different over there but MRIs show her MS is now stable I really hope the trial goes well here in the UK and they make Tysabri available to people with SPMS. Mark.