Hello all, new to the site and would really appreciate some advice. To give some background, I have always had an active job, which requires me to stay fit and train regularly and I work a 24 hour shift pattern. Around two months ago I had an eye exam at the end of which the optician told me my eyes were remarkably good considering my age (35). Two weeks later I noticed I could not recognise a person from a distance. Having only just had an eye exam I assumed this would correct itself and while in this pandemic, I did not want to trouble the medical profession. After two weeks, during which time my vision had very slowly deteriorated through the point that changing focus was taking longer, it settled on double vision when looking right and I was told that my right eye appeared to be spasming when looking right (nystagmus). The next day I attended A&E and the doctor there went through countless neurological function tests, all of which I was told were to try to rule out MS, none of which I had difficulty completing. My consultation ended with the doctor telling me I was going to be referred to the eye clinic, which should be over the next couple of days. I assume once again due to Covid-19, this ended up being a little over a week. Once there the consultant essentially confirmed what the optician had told me five weeks previously and I was referred to Acute Medical to consider MS. After a day of more neurological function tests I was taken for an MRI. A short time after that a new consultant appeared and informed me they were now assuming secondary cancer. A sleepless night later and I was back the next day to look for the primary, but a CT came up with nothing, which meant all the cancer support was cancelled. A neurologist then appeared very briefly, told me he did not think it was cancer, gave me a corticosteroid prescription and told me I would be high risk in the pandemic once I took the steroids. I have since received a telephone conversation from a different neurologist who told me that my lumbar puncture did show OCBs, which shows my immune system is up to something, but we all knew that from the big white patch on the MRI scan. He then went on to explain that nothing at this stage could be definitively MS, there is still a chance (however small) that this is a single event, and that he needed more bloods taken to rule out other similar autoimmune conditions. Then yesterday I was contacted by the first neurologist I spoke to who was very excited that he had been given the green light to consider Tysabri as a treatment, and asked me to rush in to have the JVC test. So I now have none of the symptoms I had when I left the hospital with the steroids (which by that time had become vertigo, nausea, feeling unbalanced and pretty serious visual impairment) have only had one MRI taken and this single episode, and yet when I look on the Tysabri manufacturers websites I do not appear to come close to the pre-requisites. Considering I have not had anything like a confirmed diagnosis, and other conditions are still being tested for, not to mention the outside chance that this could simply be unexplained, my opinion is that Tysabri would be the nuclear option which is disproportionate to the circumstances/condition?Any thoughts would be hugely appreciated.
My apologies this is such a lengthy post.