have finally made an effort to get on the new forum! Got my password and set up now (I think...) - haven't been on since the changes.
Just had my 6 month check up. Neuro thinks I am having one mild relapse a year while taking beta-feron. I thought this was good news, but she asked me if I wanted to start taking Tysabri - I'm very confused.
Then she seemed to back-track and said I would have to have had two relapses that required treatment with steroids to qualify. Which I haven't. Why would I be offered Tysabri if I didn't need it yet? I don't know what to make of what she said - she seemed to be offering it and not offering it. I thought it was normal to have relapses on betaferon - I mean we have no idea if it works anyway!!! I might be better off taking nothing at all - who knows! All the questions that I had when I first considered taking Avonex have resurfaced leaving me feeling a bit down. Well - I have got MS. Par for the course you might say...Tysabri though - blimey - so weird to be in a position where I need to contemplate taking a drug with potentially fatal side-effects. Thing is, I feel really well at the moment, so this has come as a bit of a shock...
Wondered if others could let me know the point at which they changed from beta-feron to Tysabri? I'm at a loss here! I need to clarify this with my neurologist, but worrying about it in the meantime!
Thanks very much,