I’ll be on Tysabri 4 years in August I’ve been relapse free since I started.
I was diagnosed in October 2006 but from then till I started Tysabri I was relapsing every 4 or 5 weeks I was even on Avonex but that do nothing for me I just got worse with every relapse till it got to the point I was in a wheelchair with just the use of upper left side fatigue was a nightmare and I lost control of my bladder and bowels.
But now the only thing thats wrong is I have to self catheterize and right leg is a bit weak but if thats all I have to bother me I’ll be more then happy.
That didn’t happen over night yes small things happen early on like being able to click your fingers and botton a shirt and tie your laces but it was around 7 or 8 months before thing really took off I was able to walk without any aids it was about 2 years before the fatigue went away I think that was because I felt able to join a gym and work out still do and I feel healthier, stronger and fitter than I’ve ever felt.
The test for the JC virus wasn’t available when I started Tysabri it didn’t matter I would have tried anything no matter what the risks when it did become available I didn’t want it my neuro would always ask me to have it done I kept telling him it wasn’t going change how I feel about Tysabri even if its positive I’m not coming of Tysabri I gave in to have it done about 3 months ago but I don’t know the results I never asked for them lol