Since I last posted about Tysabri I have spoke to an MS nurse. I have had one relapse a year since being on Avonex. Apparently if I have another relapse this year, then I could be eligible for Tysabri. I am confused! My relapses to date have been very mild, and not interfered with everyday life.
I’ve got RRMS - aren’t I supposed to have relapses?
I also thought it was usual to continue having relapses on Avonex, and it they were mild and infrequent, then the treatment could still be working.(is one relapse a year frequent??) - are there some people with MS completely relapse free on betaferon?
I still need to speak to my neurologist, but I am left thinking that I have now developed highly active relapsing remitting MS - I’ve been bumbling along thinking it was ‘mild’ whatever that label means, because it hasn’t affected my daily life. Yes I have had two bouts of optic neuritis on Avonex, a year apart (everything went back to normal after a few weeks and the last time was hardly noticeable) and I do get other symptoms, but they don’t stop me doing anything at the moment. This is so confusing. I am a bit distressed!
Anyone clear on the definition of highly active RRMS??
Thanks, Fizz x