This is my first time posting here, looking for any advice and/or support. My husband has MS and we have dealt with the various things it has thrown at us over the years, we adapt, it becomes the new normal and we continue. This new symptom of Trigeminal Neuralgia is awful and we are not sure how to cope at the moment. The Tegretol he has been prescribed does help the pain but it makes all his other symptoms so much worse that he can barely move from his wheelchair. Pre-Tegretol he could move around the home on crutches. We are only 10 days in, he is on the minimal dose and I am feeling lost in how to help him. I also feel lost in where to turn from a medical perspective, we got the prescription from our GP, his neurologist is 1.5 hours away and he speaks with him every 6 months.
Anything thoughts, advice or similar experiences would be very much appreciated.