Trigeminal neuralgia and diagnosis annoyance.

Went to the gp today as my left leg cramped up so badly today it caused me to just drop to the ground.

Gp said this is a minor relapse of my MS. And has started me on Naproxen (I’ve never been actually told I have MS, was told I might have it back in Feb, but they will do other tests before an offical diagnosis)
GP showed me a letter from my neuro confirming that I have RRMS which was dated 17th April. Nice for someone to send me this letter and let me actually know rather than leaving me wondering for months

Anyway the last few months i’ve been getting excrutiating tooth pain on teeth that have had root canals, mentioned this to the gp and she said it could be possible I have Trigeminal neuralgia.

One tooth in particular is agony today, i’ve been taking regular painkillers but it barely touches it, i’ve been trying to sleep it off most of the day, doesn’t go, i’ve tried ice packs, heat packs, still nothing. The only sort of relief I can find is ice cream, but I can’t spend all day eating that.

Has anybody been through anything similar? Any remedies you could offer me to get some relief from this horrible pain?

Thanks in advance.

Hiya, I can sympathise!

Can’t believe noone told you they had made a diagnosis!!! do they think we like waiting round for months in limbo and not being treated for relapses cos they havnt made thier mind up yet?!

My doctors are no better, still only “probable MS” cos the MRI department is so busy they havnt been able to fit me in yet, although I’ve ticked a lot of boxes over the last 6 months. So even though my sypmtoms have relapsed after a month of having nothing but tingles and minor parasthesias they wont treat me for it! Trigeminal neuralgia is a new trick that MS has just pulled out of it’s hat. I swear it’s like nothing i’ve ever felt before and my god does it hurt! I already suffer with migraines and happily gave birth without pain relief so I’m no wimp but this just makes me wanna cry every time it happens. I’ve had the odd twinge in my jaw, lips and nose but mostly it’s been pressure in my temple with added stabbing and major ear pain, like your ear is gonna burst and then intermitantly its like someone is sticking a needle right through your ear into your head. aparently the trigeminal nerve enters the skull just in front of the ear which explains the location of the pain. I’ve relalised now it was wearing sunglasses that started it off, great when its July!

Anyway, my GP has already given me topiramate which is supposed to help with parasthesias and neuralgia, you have to build up the dose though so I have no idea how this will take to work. Also have tramadol to help with an attack thats lasting a while, havnt tried it yet cos id rather go as long as possible without getting doped up. I tried codiene but that did nothing, just took enough to knock me out for a few hours.

I’ve since read that many people end up on IV morphine which still doesnt work, that makes me sad :frowning:

The GP can’t refuse to treat you and if you have TN and muscle issues which are interfereing with your daily life this should be treated as a relapse and you should be offered steroids to reduce the length of the attack. I suffered 8 weeks of hell at the strat of the year and I’m not going through that again! Read the NICE guidlines and quote them if you have to.

Good luck :slight_smile: