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Tricky situation

After peoples thoughts please.The other night my son was out in town with his girlriend when suddenly his legs gave way and he fell to the ground he then said he had pins and needles in his legs and he couldnt feel his legs as they went numb,a stranger called an ambulance and then rang my wife.I spoke to my sister and she asked what did the hospital say which they had put it down to stress of college my sister then says what a load of rubbish its Ms take him to a doctor for a 2nd opinion i said they wnt do any tests for Ms because of 1 insident i mentioned this to my wife and she said “i didnt think of that” bearing in mind that i have Ms my dad had it and so did his mum.My question is what is the chances of a 4th generation having Ms and if i took him to his doctors would it be taken seriously or am i just being paranoid.

Take him to the doctor! The worst that can happen is you get nowhere - but sounds like you’ve got reasonable grounds to at least be concerned so unless the hospital have a better idea, worth getting checked out.

I got diagnosed after one (admittedly ongoing) incident so no harm asking for an opinion at least. Better than worrying and not dong anything…

AngelaGreen thanks for replying your right better to be safe than sorry.just dnt think i could put him through all the test especially a LP

If you can afford it ask to get referred to a private neurologist. They will do the necessary then probably put your son on the NHS books going forward. So annoying not knowing and GPs nowadays tend to put all these symptoms down the stress.

How old is he? I’m guessing if he’s old enough to be out on his own with a girlfriend, he’s old enough to make the decision himself if he wants further investigation or not. Me, I would encourage him to get checked out, but not force the issue.

I was dx after one incident too, very similar to what you describe above, but looking back there were other un-connected symptoms which had been wrongly dx and treated as a TIA.

With your family history I’m surprised the hospital came up with ‘stress’. What tests did they do?

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I was just about to say the same thing… with that many generations and history, it pays to get it checked out! My legs also choose when they’re going to work, and occasionally when they’re not… after a couple of falls and crawling home on my knees because I couldn’t get up again one hot day, I bit the bullet and bought a walking stick, the sort that folds up and fits in a handbag. Not nice for a young chap to have to go through but better you know about it before it causes more damage… and nobody can make him have any treatments he doesn’t want…

Daz they can still test for MS without doing a lumbar puncture - I’ve never had one (my choice, I refused it), both neurologists that I have seen said it wasn’t necessary as it’s usually done as just another piece of the jigsaw but not conclusive on its own anyway.

Also, it needs to be recorded properly because if he has another ‘do’ in the future that could then count as his second in time and space and will mean he gets a second line DMT more quickly. If he doesn’t see a doctor it will be just an anecdote.

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Thanks everyone…my son is 17 i was diagnosed at 19 after my parents being told from me being really young from age 9 as i was having symptoms then was told i couldnt have it as it wasnt hereditary…he went hospital with his girlfriend as far as we understand they took bloods and an exray my son didnt think to mention MS

they would probably test for MS with the family history if he decides to have further testing done, a LP is not always required, I never had one, but they test to rule out everything so even if it is not MS, getting the tests done might mean he finds out the cause was something else or nothing at all.

hi

i just had one incident which led to my diagnosis just on the strength of one MRI and Lumbar Puncture.

my neuro listened to every word i said and never brushed anything aside.

looking back there had been signs for over 30 years but i was too busy being immature to do anything about it.

encourage him to see a doctor, say it’s for your own peace of mind.

carole x

How very worrying for you, it’s always alarming when our children get any sort of symptom that could possibly be MS. I was diagnosed on one episode and with an MRI but never an LP so it is possible. Perhaps your son can see his GP and ask for a referral to a neuro if he wants to go ahead.

Wishing him all the best.

On numerous occasions hes said to me “dad you know like you and grandad have ms does it mean i will” what do you say to that

My daughter has asked me the same question. I say - “It means you’ve got a slightly increased risk, but it doesn’t mean much. Try not to worry, it’ll happen if it happens but keep taking your vitamins and with a bit of luck it probably won’t.” That always seems to satisfy her, but then she is only 12.

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Angelagreen i might mention it to my ms nurse next time i see her,i see her every 3 months, see what she says and take it from there

What does he want to do? You do not say how old your son is, but, if he’s an adult, it is his decision to make. Even if he isn’t technically an adult yet, his views on the matter must surely carry a lot of weight. And if he just wants to let it go, who can say he is wrong?

It is natural that you will be concerned about what has happened to him, particularly bearing in mind your family history. But the ‘better safe than sorry’ thing can cut both ways: starting a hullaballoo about whether a young person has MS is by no means a risk-free option: I’m not talking about lumbar punctures, I’m talking about a person at the start of his adult life being lumbered with a shadow of fear that might never leave him, even if he never shows another unexplained neurological symptom in his whole long life. I’m not saying it is automatically the wrong thing to set hares running: I’m just saying that it isn’t always automatically the right thing either.

I am sorry that you have this new worry to deal with.

Alison

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Hi Alison my son is 17 ive not spoke to him about it or brought the ms thing up yet

I’ve always understood that MS itself isn’t hereditary, you inherit a genetic tendency to problems with the autoimmune system. (My mum has benign MS, my dad had rheumatoid arthritis, I have RRMS.) Having said that, it does sound as if MS runs in the family for Daz. I would encourage the son to get it checked out. At the very least the incident should go on his medical records.

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Your family GP will know how MS has affected your family. So I see no harm in your son seeing him or her, to let it be known about the incident.

If the GP thinks a referral to neurology is appropriate, then go with that.

Pollsx

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Boudica i will take him to the doctors and see what she says and will also mention it to my ms nurse