I was diagnosed with MS in April this year. Since then I’ve been reasonably ok but sometimes I’ve felt pretty awful. I started on Avonex a few weeks ago and that is going fine since then.
But, my family seem totally unbothered or interested by the fact that I have MS. Please don’t get me wrong, I certainly don’t expect or want them constantly fussing and asking about me. But between my two adult children, sister, two brothers, my husband’s sister and two brothers and my father in law, not one of them ever asks how I am, if I’m coping etc. We’re visiting my father in law over the bank holiday weekend and the rest of my husbands family will be there. We were there not long after I got my diagnosis and not one of them asked me how I was. I’m dreading visiting but for my husbands sake, I just get through it and think, we’ll be home soon. It’s either they don’t care, don’t understand or don’t know what to say! Just a little ‘how are you’ or ‘how’s the injections going’ would mean such a lot but nobody does or says anything at all.
I work full time and struggle to fit everything in at the weekend. I get very tired. Steve helps a bit but only if I ask first, so most of the time I just do it myself and then resent having to do it. He also hates it when I get a bit down and it’s like I’m not allowed to say anything negative at all. He doesn’t seem to undertstand that sometimes I need to have a rant and moan. I’ve got Multiple Sclerosis and I’m trying to get my head round that, of course I’m going to get a little fed up at times. I just can’t be cheery and happy all the time. A lot of the time, I’m perfectly fine and I’m just getting on with my life as it is now, with no bother at all. But some days, when I’m tired and in pain, I get fed up with it
Sorry if I’ve ranted on a bit but I’m sure some of you understand how I feel.