Hi, I’m recently well not fully diagnosed yet 97 days till that happens, but have had tests and told its early signs of ms. Now as you know its a shock to your system and a lot to take in and deal with. Its been 2 months so slowly getting there still lots to go, but I have a husband who 1 minute is supportive and caring to acting as though I’m making symptoms up and I should be doing more round the house. His 16yr old daughter has been researching it and changed with the things she does and the way she acts to try not to stress me out. His son, 15yr old that lives with his is a whole different kettle of fish. I’m with him more than his dad due to the hours his dad works, but I’m coping so much stuff. I message my husband at work asking for help with the boy and what I’m feeling at that time i.e pain down my right side that’s so bad I’ve tried to get up lost my balance fallen and hit my head. At that time he’ll be supportive over text but at home it’s 1 minute it’s like he understands what’s going on, but then contradicting himself and saying I should deal with it myself. All I want to do is sleep most of the time but being in the countryside it’s quiet so all I get is the boy on his phone talking. He has been told I need sleep and it causes me pain stressing but typical boy just ignores what he’s told. Has anyone had similar problems with family? Or idea how to tackle this? I know it sounds like I’m whinging but it’s more struggling to deal with me living with ms and them. Thanks Tc
“but I have a husband who 1 minute is supportive and caring to acting as though I’m making symptoms up and I should be doing more round the house.” Hi, I can definitely relate to this! Sorry can’t help with advice for dealing with kids, but the additional stress will almost certainly be having an adverse effect on your symptoms. Are you able to take yourself off to a different part of the house where you can get some peace and quiet? Accepting a diagnosis of MS (or any long term illness) is life-changing will take some time to get used to. The only thing I can say is try not to be too hard on yourself. Doing the everyday stuff that most people take for granted can be exhausting, so try to pace yourself as much as you can and accept any help or support offered. Your stepdaughter sounds like she has her head screwed on straight. It’s great that she is being proactive in researching and seeing what she can do to make life easier for you. I hope things start to get easier for you.