I’m after a few thoughts/opinions
I was dx early Feb, but had a provisional dx in Dec. I have a fantastic boss, who I kept in the loop, but she kindly kept it confidential until it was official. As I am field based, work long days and travel a lot, she then told our dept head and HR manager. I’ve alway been a ‘I’m fine…I’m copying’ kind of person, and often lying through my teeth, but since dx I have started taking my health seriously, and have been totally honest with my boss. I can often go for a week or two without seeing her (though we talk every day), and she admitted today that that worries her, as she can’t see how I’m coping. I’ve been on holiday recently and she’s contacted The MS Society and got some of the publications, but our dept head and HR lady still aren’t happy that I am well enough to work. I’ve tried explaining that I have good days and bad days, and on a really bad day I won’t be getting out of bed, let along getting in the car and putting others at risk. At the moment, apart from muscle spasticity, and fatigue related cog fog and a crazy left leg, I’m feeling really good. I understand it is really hard for them to understand, I still don’t completely understand myself.
My dept head has asked that my boss and the HR lady (who seems alright, don’t really know her) accompany me on a visit to/from my MS Nurse…I’ve only met her once, all other communication has been done by email, she is great (so far) but doesn’t really know me. I’m not sure they are going to learn a lot more by talking to her. I appreciate how fantastic and caring my company are being, and it would be a 200 mile round trip for them, but is it going to beneficial? Has anyone else had a similar situation? I’ve not asked my nurse if this is even something she would do. She has dozens of people she needs to see without having a gathering of employers with good intentions.
What do you reckon ?