Thanks to all who replied to my post about my appraisal.
I am toying with the idea of sending my boss a link to the Society’s leaflet about fatigue, because I’m not sure I’ve ever really explained it to him. Not because I’m being deliberately cagey or secretive, but because it’s not an easy thing to explain. And anyway, for me it’s NORMAL. If you feel like that every day, you don’t really ring your boss to explain there’s a specific reason you’re not feeling “proactive”, or getting through much work, because you accept that as a fact of life. If I rang him to say: “It’s because I feel as if I’ve got flu’ today - like last week, and the week before that”, what would be the point? There’s no point ringing to update him on how I feel normally.
I think other factors that may disguise the problem are that I look “normal”, those few times he does see me (we’re a geographically distributed team); I still comb my hair, and wear lipstick and stuff, and I don’t use a stick. Also the work he does receive from me, as he remarked, is of high quality. So again, no hint the person producing it is ill, or has a problem - it’s not riddled with tell-tale mistakes. Finally, I think he may misunderstand the nature of a relapsing remitting disease, and assume someone who isn’t actively relapsing is absolutely fine! Of course, as most here will know, that’s far from the truth. But he may be thinking: “She hasn’t had an episode for ages, so what IS the problem?”.
Anyway, as he’s moving on soon, I don’t know whether to take up all these things, or just leave it as water-under-the-bridge, and see how things go with the next person.
I’ve been to the doc’s this morning, and felt relatively optimistic about that, although I’ve come out with a list of prescriptions as long as your arm. I’m now prescribed FOUR separate different types of painkiller (even the ones that made me feel sick), just in case I get desperate and need to mix and match.
Also got a new prescription for diazepam - she’s accepted I’m using it for spasticity now, and not just anxiety.
And I found out the delay with the baclofen has been because the pharmacy has gone into administration! The lying toe-rags! I’m down to two days’ worth (scary!), and kept ringing up to ask why my prescription hadn’t turned up, but they claimed the surgery hadn’t done it. Apparently, all the 'scrips are all over the place, and many patients have been affected. So the doc said: “I dunno what’s happened: they’re under new management, so best thing is I’ll issue the whole lot again, and you can take it in, and start again from scratch”.
What a kerfuffle, eh? Good job I found out!
Tina
x