I have tried in vain to answer the question, where has the heart gone?
So decided to write my own post.
The people who designed this site obviously still have brains, they do not appreciate that some of us do not and struggle with constant pain, lack of concentration, memory problems.
I’m not saying it’s all down to MS as I am constantly told I am of an age…I much prefered the old site as it helped me to remember what I’d written about and who I written to and I was able to contact people without sending them private messages and then forgetting I’d done it, get the picture? It is not longer helping and supporting me as it was.
I’ve been having some trouble the last couple of days I replied to a few posts but my reply just never appeared on the board and I replyed again and still nothing but today the replys appeared It showed I replyed to the post twice and I did cause it wouldn’t show that I had the first time and a day later it came throught I thought I was going mad and my mind was going and mybe I only dreamt I replied.
I miss my buddies list, my PM messages and I miss not being able to see the postings I have made or that someone else has made by going to the profile page. I think it was very bad not to have warned us that PMs and buddy lists would be lost … Or did they warn us? I never seem to get email alerts either when someone responds to my post. I have to tick a box don’t I when writing the post. No , I don’t mind the general layout but points mentioned above really niggle. Roger
Hi, I used to come on this site every day when it was the old one now i dont at all apart form now to see whats happening …i used the asperger forum now asmy son was dx couple of months ago this site now has anything appealing to it lost my buddies so well done MS Society for getting it all wrong what a waste of money…linda
Hi everyone - I’ve posted an annoucement this morning about what we’re currently working on and some options for the next developments. Would be good to get your thoughts on that… please post on the annoucement thread rather than on here so I’ve got everything in one place…
This is what all forums on the net are like now, I know it takes a while to get used to things when they change but it does com. As a newcomer I found the old site impossible to understand, I didn’t understand all the nested comments and it wasn’t intuative at all. I use lots of forums online and this is the same. I do appreciate the sense of community may have gone as some of the previous posters don;t come here as often, but it will grow.
I was feeling frustrated with it all last week but I understand they are trying to improve it. I get fed up with people moaning (including me) but sometimes you just gotta vent. I’m better this week and do appreciate that people are trying to help us. I will persevere with it, as my Neuro told me I should do with self catheterising and I’m doing ok with that now.