Yes, heat is a disaster for me too, I get abit unnecessary and tearful when its hot and i am the least tearful person i know!!! I am going to have a look into those ‘chillows’ never heard of them before but thanks for that! x
Hey guys - So it’s not just me! The first few weeks of the heat - I loved it. Sat out in the sun (without screen for a wee while) to lap up the vitamin D & boy did I feel fantastic. However, the sat few days I’ve been low and anxious with borderline panic feelings - something that I haven’t had for a year and something that seemed to happen when my vitamin D and B were exceedingly low. The last few days has seen me staggering unbalanced in a drunk like fashion, unable to sleep (not the heat but wired awake) dealing with a lighthead and constant ‘head fizz’ and just so anxious that I’m about to have a relapse as I’m having all the symptoms I had before my first attack/episode and its almost 1 year to the day :(( I’m torn between loving the sun (in doses) in order to get real vit d and not the synthetic kind and just feeling low. Don’t understand how I was happily functioning & tolerating the heat and them bam - not at all. Maybe it’s the continuous nature of the heat and not having the usual in between days of cloud/less heat. Sue - the chillow sounds amazing! Going to hunt one out on amazon. Hoping we all come through this heat phase and we can get a wonderful summer with the temperature turned down just a few degrees.
It’s sooo hot I can’t sleep and I can’t wait for it to cool down. Since when did Scotland get so hot?
Otherwise I’m not suffering too bad just can’t get my flat cooled down or sleep. I’m a bit snappy which is made worse by the fact I can’t find anywhere cool to hide. I hate heat but it doesn’t affect my MS too bad. I’ve only got a small fan which is used more to cool down my rodent’s cage (I’ll not mention what kind of rodent I have). That and I’m south facing with windows I can’t open fully because of my blinds which I’ve only had a few months and I’d rather not break.
I sat in the sun from 9 til 10:30 on the first really warm day - was in a really bad way afterward. I’m better just skulking inside - luckily I live in a Victorian house that is always cool downstairs. It’s too cold for me most of the year but perfect at the moment.
The watermelon suggested worked a treat for me, also have a chillo pillow on its way xx
I find that as has been said, getting the Vit D in the sun is great and I do enjoy sitting in it, always have done, pre MS also. To be honest I find that the cold has more of a negative affect on my symptoms, I tolerate cold less than heat. I do of course find that heat does sap my energy which isn’t good, so during hot days when having also to go to work it is hard as with energy and concentration levels rubbish at the best of times! but on days off when I can get away with less demands put on me, I like it…With MS we are all similar in many ways, and also different in many ways, that’s MS 
Jools X
This heat is killing me & unable to work at the moment due to a relapse and this is not helping. I do like the sun but not when it is this hot and no wind here and doesn’t cool down much at night. I am doing nothing during the day apart from lying down with a fan and that’s it and of course sleeping.
I have ordered a chillo pillow which is on it’s way which I am really looking forward to.
Please please let it be cooler…
XXX
This heat is killing me & unable to work at the moment due to a relapse and this is not helping. I do like the sun but not when it is this hot and no wind here and doesn’t cool down much at night. I am doing nothing during the day apart from lying down with a fan and that’s it and of course sleeping.
I have ordered a chillo pillow which is on it’s way which I am really looking forward to.
Please please let it be cooler…
XXX
My Son’s improvised air conditioning:
Two big lemonade bottle’s full of water, freeze one solid, take out and put the other one in to freeze. Use the already frozen on in front of a fan, it last’s quiet a long time and does a good job of cooling the air down. By the time that’s melted the other one is ready, simples :). He tends not to move much in this weather but If you’ve got a big enough fridge you can go banana’s and have them all over the place :D. I am presuming your all are like us with fans just about every where.
(Don’t use the four pint milk container’s as they tent to leak apparently)
Jash
Thanks for that, Jash. Brilliant and cheap !! As someone who is completely useless in this heat and is lying, wiped out all day, this weather can pass all too quickly for me !!!
Hi not been on for a while my feet are really puffy and hurt thought would go to docs but im sure he will tell me its just the heat so to read other people are having same probs makes me feel better and saves a visit !!! hugs to all xx :0
Hi tizzie Yes mine are and the skin is drying out and flaking on the tops too. Very attractive !! Catherine xx
Fill an ordinary hot water bottle with cold water, it really does help with the hot feet and legs, I am kicking it around all night at the moment and it does give some relief. Add some ice cube too if you want 
It’s like when your feet seek out the cold bit’s on the sheet’s but with knobs on 
relief sigh!!!
I want a couple of those chillow things though, for both of us:)
He has a cool tie ( £4 approx) but it’s too thin really could do with being at least twice at thick but it still helps a bit.
Like the cold water bottle idea too. I have a couple of cooling scarves too. They’re good.
Yep, my feet and toes are like sizzling little sausages waiting for someone to prick them with a fork! Wobbled all over the place at work this afternoon and started staggering too. Altogether getting stressed this weather is allegedly staying for a bit!
My only good suggestion is those cans of cooling water - Magicool not the own brand Boots stuff, it’s rubbish. After a good old rummage, I found one in the back of a cupboard last night and I’m hoping the chemist near work stocks it, as there’s only a dribble left in the can… tried to last til I got home before blitzing my feet with it… then my throat… then my back…oops, there really is only the teensiest drip or so left now!
Keith, I’m so sorry to hear that. I hope you do manage to get thru it, it’s rough for you
I had a stonking arguement with my husband when we got home this evening. He’d noticed how bad I was today and wasn’t having a rant at me, but was raging at how quickly I’ve gone downhill, I was only told it was likely PPMS about 10 days ago - I think he’s finally calmed a little after being assured by me reading him some of this thread, the heat is very cruel to a lot of us. We’re working together at the moment and spent a lot of the afternoon bickering as I was getting really confused over just about everything! Not good.
I’m off for a cool shower and to have a look at those chillows
Sonia x
I had to go home early from work today, the heat made me so wobbly, normally my stick is fine but even that wasn’t enough support bring on the winter lol
Gill xxx
I had to go home early from work today, the heat made me so wobbly, normally my stick is fine but even that wasn’t enough support bring on the winter lol
Gill xxx
No problems with symptoms as my relapses are moreorless under control with Gilenya, but I don’t like this heat. I spend most of the day in the coolest room with a fan on full blast. I have some kind of heat rash on my hands, I suffer from headaches every day and I feel weak. Hubby reckons I’m dehydrated, but I must be drinkig more than 4 pints a day. According to the weather forecast, temperatures here in the Midlands will drop a few degrees at the weekend - 24-25C instead of 28-29C. That’s a bit better.
I would say roll on Autumn, but we’re going on a cruise in the Med in September. I’m beginning to wonder if I’ll be able to cope.