For the last week my eyes have not been ‘right’. It’s the first time my vision has been affected, and it’s horrible. I’ve had a terrible 10 days of extreme fatigue, heightened numbness and tingling, and have barely got out of bed. I’m a teacher and my 2 weeks off for Easter have been spent feeling like a deflated balloon!
Because of this new eye symptom my MS nurse think this is a possible relapse. I’m scared. Luckily she is fabulous and has sorted an appt for me tomorrow at Walton.
My eye problem is hard to describe. It’s not my vision as such - it’s not blurred or double, but when I look from side to side it feels like my brain takes a split second to ‘catch up’ with itself. It’s a horrible feeling and makes me feel like I have motion sickness. Has anyone else experienced this?
I came off my meds (tecfidera, pregabalin and sertraline) earlier this year as my partner and I want to start trying for a family. It took 3 months to wean off them and I did it very carefully and sensibly - however wondering if this is a delayed withdrawal response.
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Did your nurse mention withdrawal as a possible explanation? I don’t really have any experience of coming off meds but would imagine it’s possible that it could be that, so try not to fear the worse just yet.
It’s great you’re being seen so quickly. I can’t relate to your exact eye issues but I’ve had weird and wonderful vision problems myself that I’ve never come across anyone else having! So they can obviously be very unique!
I’m actually wondering myself if I’m at the start of a new relapse. It’s so hard to know isn’t it? I’m just trying to stay calm and think to myself well this time next week I’ll know because if it is by then it’ll be obvious. I know it’s easier said than done but maybe try and distract yourself however you can. If it is a relapse it will soon become clear. Hopefully in your case it’s end of term exhaustion. I teach too and often find it catches up with me in the holidays when I eventually stop.
Good luck and hoping for the best outcome for you 
Thank you so much for your reply. Yes the end of term exhaustion is definitely real!
I hope you stay well and you start to feel better soon. Sorry to hear you are also having a rough time of it.
She said it was unlikely to be withdrawal from the meds, as I weaned off them so carefully - and it’s been 4 weeks totally off them now. However you never know!
You’re absolutely right, it’s easy to go straight into panic mode. I can’t believe I managed to get an appt tomorrow. I will let you know what they say xx
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I’ve seen the eye specialist and she sent me through to the relapse clinic, where I have another appointment on Wednesday. They think it’s a relapse due to new symptoms so on Wednesday going to discuss whether I’ll need steroids and another MRI. Until then it’s rest and recuperate! X
That is very disappointing for you. I hope that things settle down soon
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Thank you Alison. Thankfully the staff there are wonderful and really put me at ease. I’m so pleased they have managed to get me seen so quickly. It’s just such a scary time isn’t it. Xx
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Hi, could it be Nystagmus, the eyes move rapidly from side to side? I get it when I am fatigued. Or, just a feeling of motion sickness when moving your eyes from side to side? All these are recognisable symptoms for the MS you’re feeling right now. Sounds like steroid therapy is needed. When, in the past I have had a sensory relapse it has been treated at the hospital by an intravenous drip of prednisolone followed by a week of the prednisolone tablets. And it has improved these each
time.