I watched with interest as there has been quite a flutter on MS forums. It seems to differ from the trials in the UK where they had folks in isolation and nuked their immune system. Best of luck to those who take part. Caused some discussion in our household. Mark has obviously had the funds to fly out to Israel several times, and pay for the treatment. Most of us don’t.
They say that when faced with diagnosis, we go thru shock, denial,grief, anger, then acceptance. Seems Mark hasn’t got to number 5 yet. I get what he said and why he feels its a battle. But for me, I’ve accepted what I am, and will just use my resources to give me a better quality of life NOW, as I am.
My partner has kidney disease, so both of us live with a life limiting disease and know we have to make adjustments in our expectations. Ironically, to get anything from the DWP re PIP and DLA consists of convincing them you have indeed got a disease that is incurable, and won’t get better!!
Poppy is right, I was diagnosed in 1993 and didn’t hear about DMD’s for nigh on 15 yrs! Turns out they aren’t suitable for my type of MS (i did ask).
My heart went out to Mandy. Yes, love you ARE his carer and he should acknowledge that and give you a break now and again. Its bloody hard work pushing a wheelchair! Good luck to the both of you.